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Lyme Test Help?

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Lyme Disease
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SickInCT
Regular Member
Joined : Nov 2008
Posts : 157
Posted 11/11/2008 11:27 AM (GMT -8)
Hello. I am 25 and I live in CT. I NEED your help, I am very sick. Here is the short version of my story.

I have been very sick for 6 years. I was finally diagnosed with fibromyalgia and chronic fatigue. I was very healthy before getting sick and it came on slowly starting out as just "depression" and lower back pain. I have close to 100 different symptoms and somedays I am bed ridden. I got hundreds of blood tests done the only thing they could find was a positive ANA anti-nuclear test. I have been to more drs that I could count of both hands. Recently my medical problems have progressed to heart palpitations and tremor hands on top of everything else along with the inability to sleep even with ambian. Back when this began I took antibiotics that would get me completely better then come back as soon as I stoped. The antibiotics where for chronic prostate infections that was one of the symptoms I had along with constant constipation. So my newest Dr diagnosed me with LYME based on a live blood anaysis where we could see hundreds of spirochete swimming out of my blood cells under a high power microscope. cry

BUT..
I just got a full Lyme blood workup at the hospital and my Lyme Screen was only 0.13 (negative) <0.75 in order to be positive. Then my western blot was negative on all 14 bands!! I hear the lyme tests are inaccurate but could I really be negative on all the bands and still have it!!!???

I really don't know what to do because this illness is only progressing and getting worse. I am on disability and can't work.

Thank you
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Dowa
Veteran Member
Joined : Sep 2008
Posts : 1120
Posted 11/11/2008 1:23 PM (GMT -8)
Was the live blood analysis done by Dr. Fry in Arizona? Mine showed ehrlichia when all other tests by Igenex were negative. Seems the spirochete can "hide" in the tissue and not show up on tests especially if you're into it 6 years already. I mean if they SEE the spirochete in your blood what would be another explanation??
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SickInCT
Regular Member
Joined : Nov 2008
Posts : 157
Posted 11/11/2008 10:32 PM (GMT 0)
Thanks, that's what I thought but my general Dr does not want to hear it!! I wento a Dr in CT for the blood analysts. At first everything looked normal. about 5 minutes later you see hundreds of spirochete swimming out of my cells as the cells die looking for fresh ones. I am doing Rife and Dr Cowden protocol. I am herxing big time! They say the better the herx reaction the better the healing.
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kendal122
Veteran Member
Joined : May 2007
Posts : 1092
Posted 11/11/2008 3:30 PM (GMT -8)
SickInCT, can you explain to me what they do for the high power microscope. do they take your blood and put it under it. Thanks,
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SickInCT
Regular Member
Joined : Nov 2008
Posts : 157
Posted 11/11/2008 4:51 PM (GMT -8)
Yea if you youtube.com lyme microscope then you will see what it looks like. Its a very good diagnosis test IMO because you can see it with your own eyes.

They just prick you finger, draw a drop of blood. Using a high power darkfield microscope they can see your red blood cells and the spirochete. They show up like little worms as thin as hairs but they swim all around and come out of your cells when the cells start to die off.

From my understanding there is only 2 spirochete that look like that, lyme and syphilis, so the test is very reliable. They are actually very close relatives of each other, both looking the same and even doing the same stuff to the body (in the late stages) I was screened for STDs in the begining and never had the sores that go along with it, maybe I will do another test though.

Post Edited (SickInCT) : 11/11/2008 6:13:57 PM (GMT-7)

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