How many things are wrong with this????

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woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/12/2008 12:09 PM (GMT -7)   
This an actual letter from my (former) doc broken down with my comments in parenthesis.
How many things can you find wrong with this!


"Your bloodwork was all normal." (he tested for arthritis and metabolism (thyroid function).

"The only thing left to come back is the repeat Lyme titers." (Hmmmmmh -- so you think I may be cured already???)

"You are already on full treatment that was started promptly for Lyme's disease. " (100mg doxycycline b.i.d)

I spoke to an infectious disease expert and they can see you if you're not comfortable with watchful waiting. (How long am I suppose to wait? It's been 8 weeks. How much damage will it do to my health if I'm not treated properly)

"I know when it's your own health, it seems like an emergency, but I'm not perceiving that you are in an emergency situation." (Hello!!! -- I'm dizzy, achy, extremely tired and I can't think -- but hey, don't worry about me...)

"The only thing they would do differently is do a spinal tap to check for CNS Lyme resistant to doxycycline if they felt your symptoms and exam warranted it." (at the dosage I'm at I'm sure I still have the little buggers floating around in there)

"My theory is that perhaps you are having a reaction to the doxycycline itself. I would recommend waiting until the antibiotics are done and then see how you do." (so, I may be having a reaction to the doxy, but I should stay on it???)

"If no better, I'd refer you to the infectious disease person at that point." (I have 2 days left on my doxy. How lond do you think I'll wait for an appointment?

(I ask if he was up-to-date on Lyme research and treatment)
His reply --"I'm not Lyme illiterate just because I don't respond to your emails in real time. I had to work all weekend at the hospital and did not have time to respond to all of my emails." (Even if I didn't have brain fog this still wouldn't make sense)

"I appreciate the additional references you have sent. "(two reports by M.D.'s from http://www.ilads.org)

"I do not believe in chelation therapy. It is not part of allopathic medicine except in cases of heavy metal poisoning." (Do you not know that Lyme and Mercury toxicity go hand in hand?)

"Of course you are free to pursue other avenues for medical care if that is what you would like to do." (Yippee!)

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/12/2008 12:40 PM (GMT -7)   

Woodswalker" I'm curious about the Lyme and mercury toxicity going hand and hand. Do you mean, where there's one theres usually the other?? D

PS Glad to see thats your FORMER doc.  (:


woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/12/2008 1:05 PM (GMT -7)   
I'm not an expert but from the research I have done I believe it's true
There are a lot of sites out there just Google mercury, lyme
Here is one -- http://www.chroniclymedisease.com/mercury-and-lyme-disease
an excerpt -- As part of its life cycle and survival mechanism, the Lyme Disease organism accumulates and sequesters mercury. Many researchers have observed that some infective organisms, once established inside the human body, store or use mercury to create a living environment, a niche within the body, inside which the body’s defenses are compromised and weakened due to the presence of this heavy metal. Because mercury is an immunosuppressant, it is feasible that the Lyme Disease spirochete sequesters mercury in the body as a tool for continued survival in the host environment. The spirochete would do this by grabbing onto minuscule amounts of mercury circulating in the body due to regular (small) daily mercury exposure. After time, the Lyme Disease organisms would store up more than just a minuscule amount. Significantly increased body burden of mercury would result.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 11/12/2008 5:52 PM (GMT -7)   
woodswalker said...

(I ask if he was up-to-date on Lyme research and treatment)
His reply --"I'm not Lyme illiterate just because I don't respond to your emails in real time. I had to work all weekend at the hospital and did not have time to respond to all of my emails." (Even if I didn't have brain fog this still wouldn't make sense)
Makes one wonder if he himself has Lyme-induced brain fog, LOL...
 
Glad you are going to find another doctor...this guy is clearly clueless about Lyme.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/12/2008 6:20 PM (GMT -7)   
First of all, your doctor is a big Dick Head (I wonder if d$%k h*&d will get "deleted - haha rolleyes eyes rolleyes ) .  My comments are in red :
How many things can you find wrong with this! I can no longer "count" in my head so lets just say the answer is a gazzilion!

"Your bloodwork was all normal." (he tested for arthritis and metabolism (thyroid function).  Jeeze, let's not go outside the tiny little box your doctor lives in.

"The only thing left to come back is the repeat Lyme titers." (Hmmmmmh -- so you think I may be cured already???)  He has NO idea what he's dealing with.

"You are already on full treatment that was started promptly for Lyme's disease. " (100mg doxycycline b.i.d)   This is NOT correct, he is an uninformed dick head who appears to be reciting treatment guidelines that preceded the current cr##py guidelines which I believe states that 200mg. of doxycycline is the "cure" - haha, live a week in my body.

I spoke to an infectious disease expert and they can see you if you're not comfortable with watchful waiting. (How long am I suppose to wait? It's been 8 weeks. How much damage will it do to my health if I'm not treated properly)  Ummm, not to crash the party here, but I've been doing this for 8 years since NO ONE TREATED ME DURING MY FIRST 16 MOS. of being sick!

"I know when it's your own health, it seems like an emergency, but I'm not perceiving that you are in an emergency situation." (Hello!!! -- I'm dizzy, achy, extremely tired and I can't think -- but hey, don't worry about me...)  Dump him, he's a demi-god snot.  You know what they call the person who graduated last in their medical class?  "Doctor".

"The only thing they would do differently is do a spinal tap to check for CNS Lyme resistant to doxycycline if they felt your symptoms and exam warranted it." (at the dosage I'm at I'm sure I still have the little buggers floating around in there) This is wrong and can be dangerous.  I asked my LLDr about a spinal tap and he responded that he would NEVER put me through that since my test results obviously indicated that I had LD.

"My theory is that perhaps you are having a reaction to the doxycycline itself. I would recommend waiting until the antibiotics are done and then see how you do." (so, I may be having a reaction to the doxy, but I should stay on it???)  His "theory" sucks wind.

"If no better, I'd refer you to the infectious disease person at that point." (I have 2 days left on my doxy. How lond do you think I'll wait for an appointment? Just get to a Lyme literate doctor asap, skip the infectious disease, rheumatolgist merry-go-round and just get to a doctor who knows what they are doing!

(I ask if he was up-to-date on Lyme research and treatment)
His reply --"I'm not Lyme illiterate just because I don't respond to your emails in real time. I had to work all weekend at the hospital and did not have time to respond to all of my emails." (Even if I didn't have brain fog this still wouldn't make sense)  His "schedule" is not your problem.  He works for you - who else could you employ that would have the cajones to say this???? He took an oath.  Maybe you could email him a copy of it and he'll eventually get around to reading it.

"I appreciate the additional references you have sent. "(two reports by M.D.'s from http://www.ilads.org) translation:  "I haven't read any of this stuff and probably never will."

"I do not believe in chelation therapy. It is not part of allopathic medicine except in cases of heavy metal poisoning." (Do you not know that Lyme and Mercury toxicity go hand in hand?)  I have no experience and so I'll take a pass on this one - haha rolleyes

"Of course you are free to pursue other avenues for medical care if that is what you would like to do." (Yippee!)  I no longer want you as a patient because I would actually have to do "work" and "research" because I don't know anything about Lyme disease.... and it's probably all in your head anyway.
Welcome to the Hotel California.... "you can check out any time you want, but you can never leave".
Man, I am just spreading the good karma lately. rolleyes shocked eyes devil blush smilewinkgrin blush devil eyes shocked rolleyes

We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE
Current Rx's 08/25/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet 
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
I don't know how much more I can take song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "Ain't found a way to kill me yet" - http://www.youtube.com/watch?v=5gHiR1xeOSs
 


woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/13/2008 8:28 AM (GMT -7)   
JELAINEP -- thanks! HA! Loved your responses!

I went to this doc because I knew him socially, not friends but in my social circle. Also, the location I got bit was less than 2 miles from his office! He has a great reputation for working with people and generally exhibits a real caring for his patients -- except in the case of Lyme.
So, yeah -- the term #$%^head does come to mind when I think of him now!!

Get this -- even after I fire him he comes back with this:

"The article you sent me from the Lyme Society guy is interesting in that it implies that the dose of doxy recommended by the CDC may not be high enough for some people. If you're not alot better in a few days off the doxycycline, I really recommend that you see the Infectious Disease person. Your case is not run of the mill. If you still feel lousy by Monday, let me know and I'll make the referral."

Contessa420
New Member


Date Joined Nov 2008
Total Posts : 6
   Posted 11/13/2008 8:47 AM (GMT -7)   
That's just ridiculous! I am so sorry you are dealing with this idiot. Definitely find an LLMD; although, I would definitely do the spinal tap because if it is present in your fluid, they will treat you with IV antibiotics - which will be (fingers crossed) more effective than the oral doxy...I'm starting IV Dec. 1st - for a month - 45 minutes a day - everyday. If you live in the NYC metro area - let me know and I can give you some great people to see.
Good luck and be well!

woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/13/2008 12:39 PM (GMT -7)   
Thanks Contessa420 but, I do not live in NYC area -- I'm in northern NY (about 7 hours from the city) where Lyme literate doctors are scarce! I'm thinking about the IV and also some alternative treatments -- doing my research...

woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 11/14/2008 8:10 PM (GMT -7)   
UPDATE:
I have a new doctor! This is an excerpt from her email:

"For further information, look up ILADS.org go to articles, Dr Burrascano on the treatment of lyme, also go to canlyme and CALDA to understand what is going on. There can be co-infections which are infections acquired at the same time with the same bite...."

I like her already and I haven't even met her yet!!!
100mg doxy b.i.d. 42 days
Recently started Salt/C, grapefruit seed extract, COQ10, anti-inflammatory herbs, omega 3

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