To exercise or not to....

LupnerRN

Regular Member

Joined : Sep 2008

Posts : 350

Posted 11/12/2008 10:42 PM (GMT -7)

This is the question?

I'm 4 months into my LD treatment (Biaxin, hydroxychloroquine, multiple suppliments, etc), read the Burrascano 2002 report that said no aerobic exercise til symptoms gone. The 2005 report says to exercise asap.

Well, what is asap? When your not tired or have major body aches all the time?

What type of exercises are you all doing? What helps?

Thanks, Lisa

JELAINEP

Veteran Member

Joined : Sep 2007

Posts : 2017

Posted 11/13/2008 4:32 AM (GMT -7)

I haven't truly excercised in years.... I don't have it in me. I have a 10 minute stretch routine that I try to do a few times a day. I can hang on to the footboard of the bed for support.

A few years ago I did do daily swimming which helped..... but then I started getting sinus infections and colds, etc. - or - was on abx's that would not allow me to be in the sun. I am going to try to do the swimming thing again next summer if I'm not on certain abx's.

We'll get through today - Jennifer

^{06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE - NEW!!! AND UPDATED!!! - turned out to be 10 weeks of IV Rocephin, my first visit to a Pain Management doctor - oops, but she was cool, non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing. And, my abx's have changed again, just see below.}

^{NEW!!! AND UPDATED!!! - Current Rx's 08/25/08 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg Rozerem 8mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet I never did order that off the internet,}

^{Medicare/SSDI theme song}^-^{http://www.youtube.com/watch?v=bd2B6SjMh_w}

^{The "I don't know how much more I can take of this", song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "}^{Ain't found a way to kill me yet" -}^{http://www.youtube.com/watch?v=5gHiR1xeOSs}

kandinsky

Veteran Member

Joined : Sep 2006

Posts : 2300

Posted 11/13/2008 6:44 AM (GMT -7)

I think it depends what your symptoms are like now and how fit you were before you were ill. I would start with stretching and slow walking then increase things from there.

jk1212

Regular Member

Joined : Oct 2007

Posts : 100

Posted 11/13/2008 7:40 AM (GMT -7)

The Burrascano Report tells you that weight training is required and to avoid aerobic exercise until your stamina is improved. It has to do with tissue perfusion, oxygen levels (Lyme can't handle more than a minute amount of oxygen) and core body temperatue. It's about reversing the deconditioning process that most LD patients experience.

MountainBiker

Regular Member

Joined : Dec 2006

Posts : 106

Posted 11/13/2008 10:39 AM (GMT -7)

Ohh boy, I'm on the same two drugs and I exercise minimum of 90 minutes/day 6 days a week.

My biggest issue is having a biaxin related emergency mid workout

king1234

Regular Member

Joined : Nov 2006

Posts : 491

Posted 11/13/2008 11:19 AM (GMT -7)

Why cant one exercise? Is it due to the meds or lyme? I have no dx but think I have lyme, I work out daily...

----------------------------------------------------------------------

33 yr old female

GERD dx March 2007

Migraines with Aura

IBS

Currently no dx for: migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body.

New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .

TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR

Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LupnerRN

Regular Member

Joined : Sep 2008

Posts : 350

Posted 11/13/2008 1:21 PM (GMT -7)

Thank you everyone for your responses!!!! They're very helpful.

I'm still pretty tired and achy most days, but just got back from Disneyland for 5 days without the total body breakdown I thought I'd have. We walked our butts off!! I had extreme leg cramps acouple of nights. But when you've spent alot of money you don't have to have fun, you push your way through the pain.

So, I guess I'm ready to at least start a daily walking plan. I think I need to get more serious about stretching too.

King, the Lyme kills your energy levels and makes you very fatigued. My stamina level is starting to increase now. I've been on meds for 4 months. But I still have real bad days were I'm totally slammed and just want to sleep and not move all day.

Lisa

Sulma

Regular Member

Joined : Apr 2008

Posts : 366

Posted 11/13/2008 8:32 PM (GMT -7)

Since I first became symptomatic I don't think I ever felt as consistently good as when I was pumping iron 4 days a week. I had to quit when some really vicious Herxes caused me to vomit so long and hard I suffered an umbilical hernia I haven't had the money to have fixed yet. I cant wait to get back to lifting. I totally believe LLMD's that advise exercise for us are totally correct in it being therapeutic.

jennie48

Regular Member

Joined : Sep 2008

Posts : 293

Posted 11/13/2008 10:50 PM (GMT -7)

i wish that i could get back into my cardio routine....when i first got sick i was going to the gym in the morn but then i would sleep right after and not feel better....but i think now i mite try to do some short walks around the neighborhood or on the treadmill and try to start lifting again soon but with very very light weights...my body is so achy and my knees hurt so much that its hard to exercise.

but i do believe that a lil stretching and short walks can help us mentally and physicly....just dont over do it and listen to your body :0)

"I will not let Lyme controll my life i will controll my own life"

lyme since June 08

meds-zithromax 500mg one a day/ 1 month // Plaquenil 200mg twice a day/ 1 month

starting 10/3 doxy100mg // omnicef 300mg

ADHD/anxiety/depression// celexa 20mg

king1234

Regular Member

Joined : Nov 2006

Posts : 491

Posted 11/13/2008 10:53 PM (GMT -7)

Jenny were you pos by cdc standards?

How long have you been on meds and how long did it take for you to start feeling btr?

----------------------------------------------------------------------

33 yr old female

GERD dx March 2007

Migraines with Aura

IBS

New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .

TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR

Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

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