I haven't been around for a while due to treatmeents and feeling like craapola, etc.
I recently finished 10 weeks of IV Rocephin plus other rx's. At times I felt like I had more energy, but the energy still only lasted about 1-3 hours a day.
I think I had one bad herx, the night of the Democratic nomination. My husband took a picture of me sitting in our bed. I have an ice pack strapped to my head (by my robe tie) and another bag of ice on my left shoulder. I'm holding my Rocephin IV ball against one of the ice packs because I was waiting for 9:00pm to start my IV.... and had to keep the medicine cold. I have a towel on my head covering my right eye becaue I could not tolerate the light from the TV. And, I'm tearing up over the Dem. nomination because I felt that history was being made in my lifetime and I was very emotional... that picture is probably one of 3 that have been taken of me in the past 8 years!
Anyway, after the IV stuff was over, my LLDr. looked at me and said, I'm going to start you on some new abx's.... "and you're going to get worse." AAAAAAHHHHHHHHHAAAAAHHHHHHH - I said quietly to myself in my head - to my 2 remaining brain cells.
So, I finally bit the bullet (after 8 years of torture) and went to a Pain Management doctor (recommended by my LLDr) because if I was going to "get worse", I was going to be on pain drugs first.
I started the Levaquin and Rifampin yesterday. The Lyrica prescribed by the pain dr. seems to be working... although I feel a little stoned and hung over (but in a fuzzy kinda good way - and NO headaches!). The pain dr. also switched me off Restoril to Rozerem. She said Restoril will knock you out, but it does not help provide quality sleep like Rozerem supposedly does.
I am slowly getting back to some assemblance of a life, but I can tell it's going to take more time (it always does).
As always I thank you guys for being here so I can dump a little and b%^$h a little....
I love emoticons, but we need one sitting on a toilet, one puking into a trash can while sitting on the toilet, and maybe one with a rash all over the face???? Just a few suggestions.
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE - NEW!!! AND UPDATED!!! - turned out to be 10 weeks of IV Rocephin, my first visit to a Pain Management doctor - oops, but she was cool, non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing. And, my abx's have changed again, just see below.
NEW!!! AND UPDATED!!! - Current Rx's
08/25/08 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg Rozerem 8mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet I never did order that off the internet,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w
The "I don't know how much more I can take of this", song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "Ain't found a way to kill me yet" - http://www.youtube.com/watch?v=5gHiR1xeOSs