How did your first symptoms start? When did you suspect lyme? How long did it take you to get dx? Were you positive per cdc standards? How long have you been on meds and how long did the meds take to start working?
I started with a right swollen knee, severe depression, and then knee joint pain.... and then hip pain. Since I already had "depression" (pre-Lyme) which was VERY under control with medication and had NEVER caused physical pain, swelling or a missed day of work.... I turned to my psychiatrist for help with the "severe" depression. She called it "breakthrough depression", etc. So as I am physically getting worse and worse, I'm being treated with all kinds of antidepressants, anti-psychotics, etc. It was pure he11. I was told for 13 months that it was "all in my head". Finally, I told her that I wanted an entire MRI of my body and brain becuase I knew there was something physically wrong wih me. Her response? "Well, I did have a patient with a brain tumor once." Finally I made an appointment with an orthopeadic dr. to look at my swollen knee. Prior to my appointment I was trying to find an anotomically correct picture of a knee and I stumbled across Lyme disease. I had almost every symptom. So when I went to the orthopeadic I asked him to run a Lyme disease test. A few weeks later he called me back and told me that all my tests were negative EXCEPT for the Lyme disease test (EIA). Thus began a 4 month journey of being yelled at and dismissed by various infectious disease doctors. FINALLY, I found a doctor to treat me. I had been sick for 16 to 17 months before I received my first rx for 200mg of doxycycline. Man was I pizzed off. All of that misery and all it took was an antibiotic?????? A cheapy everyday antibiotic?????
I took the oral Doxy for 4-6 weeks and returned to work part-time from 03/02 through 10/02.... and then I relapsed... and I again tested positive for LD and then the IV s%^t began.
I have tested positive for Lyme disease and Bartonella by NY state standards (like I care, I live in FL) and CDC standards. So in that respect I guess I'm lucky.... I actually have a positive LD test... that can't be disputed.
I have been sick with LD since June 2000. First tx started approx. December 2001 through January 2002. Relapse October 2002. Been sick ever since, have tried almost everything... seems like I have a complete breakdown about every 3 to 4 days. I just can't believe that this is happening to me.... to all of us!
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE - NEW!!! AND UPDATED!!! - turned out to be 10 weeks of IV Rocephin, my first visit to a Pain Management doctor - oops, but she was cool, non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing. And, my abx's have changed again, just see below.
NEW!!! AND UPDATED!!! - Current Rx's
08/25/08 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg Rozerem 8mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet I never did order that off the internet,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w
The "I don't know how much more I can take of this", song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "Ain't found a way to kill me yet" - http://www.youtube.com/watch?v=5gHiR1xeOSs