Tonight I spoke to a woman on the phone who has lyme, she lives north of me. She saw the same dr I am seeing for Lyme. I had my 1st appt 6 wks ago, she saw my Igenex results (only band 34 pos and 31 41 IND on the IGM), and sent me in to get tested for co infections. I see her again Monday
I have had a full body bone scan, MRI of head and spine, EMG, TONS of blood work, have seen at least 10 drs-noone knows what is wrong with me. That leaves my mind to run rampid thinking I have MS or ALS or other things even though I know my symptoms dont 100% match either or any of those.
My fear is that my co infections come back negative, I have heard they can as well as lyme per cdc standards anway. My fear is she wont clinically dx me.
If you were in my shoes what would you do? I would like to request from her to give me doxy or whatever for at least two wks to see if I herx, feel btr and I could do the urine challenge. I am fearful I am going to be stuck in the same situation, no dx after my appt and no meds.
Would 2 wks worth of meds do me a lot of harm if I didnt have lyme
My joints are now grinding on each other, I am getting worse with whatever the heck is going on in my body.