Dowa-- Yes, when I first began treatment with LLMD, I had many days when I couldn't hold my head up----muscles were very weak. My arms and legs were also weak..I believe, in my case, it was due to babesiosis. That dreadful weakness is now much better after two years of treatment. I began retreating the babs again two months ago as the symptoms were beginning to creep back into my body.
I can remember standing in the shower and leaning my head on the shower wall as I just felt I couldn't hold it upright. Have you been tested for babesiosis? How long have you been in treatment? It does get better over time and those pesky neurological symptoms wane so that at least you can function.
Hope you feel better soon,