Hey georgiagirl- So glad to hear the Rocephin is making a difference. I am now waiting for my appt. to have another line put in. I saw the doctor last Friday and he said I am looking at a year on IV so they are going to do the chest port. I was on for 6 months and have totally relapsed. I have been on orals but they are doing nothing at all.
My question is if you are on anything else besides the Rocephin. My doctor is talking about pulsing Rocephin and Zithro since I did relapse. When I was on Rocephin before I was also taking Malarone, Rifampin and Plaquenil. The doctor told me at the appt. that once the Rocephin starts hitting the bugs they turn into cyst form so I need to have Zithro to break that up. Maybe when I was on it before they were all hiding out and that is why I felt so good. It is all so confusing. I just want to make sure I do it correctly this time.
I hope you keep feeling better and better!!