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lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/18/2008 9:07 PM (GMT -7)   
Has anyone with chronic lyme has their hair start thinning and receding? Mine is doing this and freaking me out. I have always tested positive by IGM western blot with all 5 critical bands, but always negative on IGG western blot. I saw a LLMD in NY who was on the fence as to whether it was lyme. He sent my labs to several places and results were the same...my only positive is that IGM western blot. So if I had this for a long time then maybe my IGG response is gone or something...dunno.

I do know I have pain in most joints and chronic fatigue, high blood pressure, non-detectable vitamin D, lower back pain, muscle twitching, muscle jerking, weird tingling all over, esp in my ears -- very annoying, hip pain that shoots down my legs when I sleep on my side at night, and now disappearing hair. If I was a man, that would be one thing, but most women do not lose their hair!

Thought anyone??

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/18/2008 9:34 PM (GMT -7)   
Yes, I have the thinning hair as well. When I am having a flare-up of symptoms, I will notice alot of hair in my brush before anything else. I am also female, and they tested my thyroid a million times blaming it on that but it is ok. I do believe it is on the lyme symptom list.  D

lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/18/2008 9:36 PM (GMT -7)   
D --

Is it thinning to the point where you can see the scalp in the front???

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/18/2008 9:50 PM (GMT -7)   
Yes, at times my scalp is even shiney it is so thin. When I start to feel better, it will improve. I am not sure why Lyme causes hair loss, I was sort of blaming it on stress and then I saw it on a lyme symptom list.

lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/18/2008 10:13 PM (GMT -7)   
Yes its quite strange. I am going to see a dermatologist on Friday and have them take a look at it. My rheumy did not believe that it was thinning as I started out with TONS of hair. But when I can see the scalp pulling it back in a pony tail and I can see a little patch missing right in the front, its very obvious to me. It also pulls out easily.

So your lyme symptoms come and go?? Are you on antibiotics?

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/18/2008 10:36 PM (GMT -7)   
No, I am not on antibiotics. I also was exposed  to toxic mold and they are not advised until I get control of the fungal problem. Even without antibiotics my symptoms come and go. I know alot of people here blame that on the treatment. I have had really good luck with sauna, did it religiously for 14 months. I would be interested to hear what the dermatologist says about the hair loss.  Good luck with the appt. D

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/18/2008 11:09 PM (GMT -7)   
YES in fact everytime I put my fingers through my hair, hair comes out. I was just thinking about how worse it seems to be getting.

----------------------------------------------------------------------
33 yr old female
 GERD dx March 2007
Migraines with Aura
IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 11/19/2008 8:43 AM (GMT -7)   
Yes, I have had the same experience. My hair was very thick. It was falling out all the time filling up my brush and even clogging the vacuum cleaner!! It started a couple of months ago. I am taking replacement progesterone and I cut back about 30% on my dose. I thought this might be the cause. After pregnancy your progesterone levels decline causing hair loss. Then I read about hair loss related to lyme. I don't know what to think but it seems to be getting better.

kwahraps
Regular Member


Date Joined Jun 2007
Total Posts : 44
   Posted 11/19/2008 9:16 AM (GMT -7)   

If you are having blood work done, ask them to check your thyroid levels.

Hypothyroidism can cause coarse/thinning hair. 

http://health.yahoo.com/hormone-symptoms/hypothyroidism-symptoms/healthwise--aa34887.html

At the very worst, you can cross it off your list if the results are negative.

For what it is worth, here is a link I found when searching for hypothyroidism and lyme :

http://www.stopthethyroidmadness.com/lyme-disease/

Good luck.


lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/19/2008 2:05 PM (GMT -7)   
Ah...I have had my thyroid checked and its been low normal and normal over time. So low TSH as in hypERthyroid. So I was wondering if hyper can cause hair loss, but it seems to be hypo! Drat it all. I have been taking IVF hormones, maybe its that, but I think it started before then..just not sure. I am sure its getting worse. Hmmm so mayb e the progesterone has done it to both of us. My clinic doctor said progesterone can cause you hair to all cycle together. I guess hair falls out every so often and is replaced bye a new follicle. Buts its random. However if the hairs starts all cycling together, they all start to shed at the same time. But that is usually with pregnant women taking progesterone for a while or having higher progesterone for a while....


I will let you guys know what the dermatologist says!

janem
Regular Member


Date Joined Nov 2005
Total Posts : 423
   Posted 11/19/2008 8:44 PM (GMT -7)   

I woke up one morning BALD on my left side ( worst affected side of my body ) ...actually this was quite a relief , in a strange sort of way. People had been telling me there was nothing the matter with me for so long - and as soon as I had this ( cosmetic ) problem all the doctors suddenly sat up and listened. I polished my bald spot whilst re-telling them all what I had been telling them for a year. Only NOW they listened. They believed  me . The hair grew back . Almost at the same rate as my self confidence.

Good Luck.

 

NB Thyroid / Adrenal / Pituitary tests were normal throughout !


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 11/21/2008 7:01 PM (GMT -7)   
I just read that hair loss can be caused from B12 deficiency. Many of the symptoms of lyme are similar to B12 dificiency and it is often given to lyme patients. Look at your fingernails, please, and comment if you have moons on them. That is also a sign.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/21/2008 7:23 PM (GMT -7)   
Read about thinning hair in the paper the other day. thought it interesting.

Dear Dr. Donohue: I am a 44-year-old female whose hair is falling out. I do not wash my hair every day, because it falls out after washing it. I have had thyroid tests (which were fine), went to a dermatologist who found nothing wrong and went to my ob-gyn doctor for hormone testing. The results came back slightly elevated. I was told to take zinc and my hair would grow back. Please advise me why this is happening and what I can do. -- E.W.

Dr. Donohue: You have done everything that you can reasonably do and have seen all the doctors you could reasonably contact, but your problem remains. Although the following doesn't apply to you, I'm including it for other readers. An overactive or underactive thyroid gland can lead to hair loss. Iron deficiency is another cause for losing hair. Rapid weight loss can do it. Medicines are another possibility. Lupus is an example of an underlying illness that promotes hair shedding.

I'm not sure what you mean by a "slightly elevated" hormone test. Was that male hormone? Women do make male hormones, and some women are quite sensitive to it. It can cause hair to fall out, just as it does in men. Medicines can counter the male hormone elevation. This is the reason why so many menopausal women experience hair thinning.

Physical or emotional stress forces a larger number daily hair loss. The loss occurs approximately three months after some type of stress. Examples of stress include illnesses, especially those with a high fever, childbirth or any number of emotional conflicts. This kind of hair loss is telogen effluvium. The hair always grows back. Can you pinpoint anything that happened to you two or three months ago that might qualify as stress?

At any rate, don't pull your hair with any kind of hairdo that causes pressure on it, like a braid or ponytail. Limit permanents. Limit the use of a blow-dryer. If things don't turn around in another couple of months, go back to the dermatologist for another examination. If no cause is ever found, you can consider Rogaine.

Damrak
New Member


Date Joined Jan 2012
Total Posts : 5
   Posted 5/20/2016 7:40 AM (GMT -7)   
I tried everything, from lemon water - essential oils, ACV hair masks, olive oil, changing diet, upping zinc - removing herbs, etc. Nothing really worked.

However I noticed a huge reduction in shedding now that I am using the folate and B-12 free B-complex from seeking health. I think the high dose niacin and the activated forms of the other B's have something to do with it. Just a tip for lymies dealing with the same issue.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 6201
   Posted 5/20/2016 9:48 AM (GMT -7)   
Hi Damrak -

Sorry you're dealing with hair loss—I've been there and it is not fun. For me it was likely a thyroid imbalance but got much worse when I was eating a food powder that included a rice product that was sourced in a heavy metal area in China. Once I stopped eating it my hair grew back. You were smart to investigate the B's and folate. If you are processing them well it may indicate you don't have any DNA mutations that affect the processing of them but if that ever changes, that's something you can look into.

ALSO - I just wanted to bring to your attention that this thread is from 2008 so you might want to start a new discussion since most of the posters are no longer here - it might get more attention.

-p
Chronic late-stage lyme—likely infected in 2000; Clinically dx 3/2014 w/ Babs, positive for Bart, CDC-pos for Bb. Multiple viruses & GI/immune treated first; started AL-Complex in May, A-Bart & A-Bab in July; 11/2014 IV port installed, started Rocephin; added vancomycin 3/2016
DETOX: Pinella/Burbur/Parsley/Milk thistle seed/Burdock root cocktail; japanese knotweed, L-5-MTHFR, LMN-V-II, probiotics

Garden Peace
Forum Moderator


Date Joined Sep 2012
Total Posts : 4191
   Posted 5/20/2016 10:10 AM (GMT -7)   
My daughter loses less hair since her thyroid function improved. She lost a lot at on point, shocking the person who was cutting her hair. She had such thick hair, so she didn't mind losing some of it.
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