I followed the "anything to knock me out" plan which included; Tylenol PM, (occasionally Vick's Nyquil), Restoril, a Xanax, and a pain pill (if I had one) and if that didn't do it I might take 1 more Restoril or one more Tylenol PM and if I wasn't out within an hour.... then that was it, I knew I wasn't going to sleep. I usually would put on a pot of coffee, watch old movies (or "Under Our Skin" for the gazillionth time), maybe due a Puzzle book, sometimes clean like one piece of furniture reallly well... write on this site.
I was recently prescribed "Rozerem" for sleep. The pain mngmt. dr. said that Restoril may knock you out, but you're not getting a deep sleep and usually wake up in the middle of the night (which only happened to me a few times)....
And, my new Lyrica rx... seems to be working a little, I can't believe it. I told my husband that my knees and left side of my neck and head still really hurt (ache, crack, grind, etc.), but at least my entire body didn't feel like one big, red, blue green, bruise. And another thing, she believes that the reason the Darvo was working so well for me as opposed to the more potent pain killers was because of the amount of Tylenol that's in the Darvocet. I told her I had been doubling the Darvo dose (which is why my LLDr. referred me to her) AND taking Tylenol. She said that all of the Tylenol could be making my right side hurt. Sooo, I stopped all the Tylenol, and started the Lyrica, I have significanlty dropped the amount of Darvo to about 3 - 4 per day... and NOT doubled up. And, I've discontinued almost all extra Tylenol... and my side has stopped hurting a lot. Every once in a while it hurts, but it's more mild and doesn't last as long.
Hope this helps.
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing. Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,