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How is Lyme CNS diagnosed?

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Lyme Disease
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hopingToFindCure
Veteran Member
Joined : Nov 2008
Posts : 759
Posted 11/20/2008 7:33 PM (GMT -8)
I believe I have this as I have memory issues, neck pain, and spinal pain.

I've seen two lyme specialists and neither ever mentioned CNS Lyme.

Why aren't they better at communicating?
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mari33
New Member
Joined : Nov 2008
Posts : 2
Posted 11/21/2008 11:19 PM (GMT -8)
what exactly is cns?
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hopingToFindCure
Veteran Member
Joined : Nov 2008
Posts : 759
Posted 11/22/2008 6:34 AM (GMT -8)
Central Nervous System...YOu know where your neck hurts like it's menengitis and your face is numb and you have photosensitivity....
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peacesoul
Veteran Member
Joined : Jan 2007
Posts : 2446
Posted 11/22/2008 9:38 AM (GMT -8)
There are not conclusive tests for lyme
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hopingToFindCure
Veteran Member
Joined : Nov 2008
Posts : 759
Posted 11/22/2008 10:47 AM (GMT -8)
yeah I know, but some claim their lyme is neurological. how is that dianosis made?
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kitty9309
Regular Member
Joined : Oct 2008
Posts : 163
Posted 11/22/2008 2:35 PM (GMT -8)
It is mainly based on symptoms. Some docs think a spinal tap is the way, but it isn't often positive in the spinal fluid.

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king1234
Regular Member
Joined : Nov 2006
Posts : 491
Posted 11/22/2008 7:52 PM (GMT -8)

How do you know what meningitis feels like? about a month after all of my pains (5 months back) I have had a bruised like feeling on my spine that is right above my bra strap-constant, feel it more when I wake up or lean over. I had an MRI of my spine and was fine. I wonder if I should be screened for meningitis?

My LLMD believes I have lyme in my CNS even though I did not test pos on 2 IGM (see my signature)--due to my symptoms.

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kitty9309
Regular Member
Joined : Oct 2008
Posts : 163
Posted 11/22/2008 8:49 PM (GMT -8)
The positive sign for meningitis is if you have severe pain when trying to put your chin to your chest.
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king1234
Regular Member
Joined : Nov 2006
Posts : 491
Posted 11/22/2008 10:02 PM (GMT -8)
Oh in your neck? Okay whew I am clear. I get so paranoid about everything with so much funky stuff going on in my body. This odd bruise pain on my spine puzzles me, I have slight DDD near that area per my MRI of my spine--wonder if lyme can inflame that more?

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hopingToFindCure
Veteran Member
Joined : Nov 2008
Posts : 759
Posted 11/23/2008 5:03 AM (GMT -8)
I also feel bruised. This morning in my achilles tendon. OUCH
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