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Posted 11/22/2008 6:01 AM (GMT -7)
My neck pops when I move my head to the left or sometimes when I move it forward.

My throat thumps when I swallow. Had it checked by ultrasound, by and ENT and a gastro whatever. All normal.

My pinkies get stuck in straight position...

My shoulder pops and crunches. My knee does too.

DOES ANY KNOWN TREATMENT FIX THESE ISSUES?

Very annoying.
Posted 11/22/2008 10:41 AM (GMT -7)
Lots of wine
Dinner with Hugh Jackman
A week at the beach

and an all week shopping spree :-)

You should be fine after that






















I have no idea

The world breaks every one and afterward many are strong in the broken places


Posted 11/22/2008 11:35 AM (GMT -7)
Peacesoul: Sounds GOOD to me! tongue    D
Posted 11/22/2008 11:45 AM (GMT -7)
A week long shopping spree -- with what ???

Thanks anyway. The beach sounds good.
Posted 11/22/2008 8:54 PM (GMT -7)
I have the SAME thing. EXTREME joint cracking all over -it is insane. Its to the point my joints are grinding and popping out of socket.

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33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/23/2008 6:15 AM (GMT -7)
I know what you mean.

My two pinky fingers are so stiff, they don't bend. Cortisone did NOT help.

Oh well. Paquinil may be next for me. Have you tried it?
Posted 11/23/2008 1:16 PM (GMT -7)
My joints dont feel stiff, they just crack non stop. Its too the point they grind and pop out of socket. Sometimes the same joint cracks 5 times back to back in 30 seconds. I have been taking fish oil and gluc. This one one of my first syptoms right after all the stabbing pains started...
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33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/24/2008 4:02 AM (GMT -7)
well, don't try the "Puppy cure" haha. Anyway other treatments might include dinner with Vinnie Lecalvaliar... well no, I take that back... a full body massage by Vinnie L!!!!!!!!!!!!!!!!!!!!!! I need to get a life.... ANY life.
We'll get through today - Jennifer

06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,

Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 

"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs

 

Posted 11/24/2008 11:39 AM (GMT -7)
Oh my goodness I just got my puppy yesterday and he is a handful!

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33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/24/2008 12:37 PM (GMT -7)
I wrote this once in another post (so forgive me if I'm repeating myself - haha), but for about 2 years prior to LD, my joints used to pop and crack so loudly that I once had someone at work ask me "What is that noise".... and I had so say, "ummm, It's me."

And, I have always been able to pop my shoulders in and out while in bed. I'll be sleeping on my side and it just slips right out of the socket, and then right back in. I have Ehlers Danlos but just the very mild kind which is a kind of hyper-extension. Itstead of standing and touching my toes, I can touch the floor with my hands and walk on my hands backwards between my leg (I know toooo much information)... anyway I can do all kinds of wierdo stuff with my fingers and am somewhat ambidextrous.... very wierd, all of it.

My RA (the nice one) and my LLDr. said I was a "perfect host" for Lyme disease. I also was an ear infection baby (family lore is that I have always snored like a sailor and still do) and had my tonsils and adnoids removed.... and I had a few bad strep infections... all of which adds to being somewhat immune depressed and my joints were primed to be slightly suseptable to arthritic conditions... and then WHAMO I get Lyme disease. It really hit my knees hard and my hips. I cannot do a deep knee bend at all. I can hardly get up and down a few stairs.

Lyme disease.... still sucking after all these years............
We'll get through today - Jennifer

06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,

Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 

"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs

 

Posted 11/24/2008 12:42 PM (GMT -7)
Wow! I looked into Elhers but I am not THAT flexible. My joints are awful though. Somedays are MUCH worse than others.

----------------------------------------------------------------------

33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/24/2008 4:55 PM (GMT -7)
King: What kind of puppy?? That would make me a very HAPPY camper!  D

Posted 11/24/2008 5:43 PM (GMT -7)

A little basset hound, he is 8 wks old-all wrinkles and long big ears. Just a ton of work and not a lot of sleep for me which is bad!

I went to get a massage today and the woman noticed how loose my shoulders are because they kept popping out of place and grinding. Wonder if it could be my thryoid causing this....

----------------------------------------------------------------------

33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/24/2008 5:56 PM (GMT -7)
What's the puppy's name?
We'll get through today - Jennifer

06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,

Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 

"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs

 

Posted 11/24/2008 6:39 PM (GMT -7)
Ralph- and he is a lot of work!

----------------------------------------------------------------------

33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/24/2008 7:21 PM (GMT -7)
My shoulders are also very loose and they pop out, my thyroid is fine. I really cant figure out what causes so many of us to have the popping, crackling joints.  D

Posted 11/24/2008 9:38 PM (GMT -7)
I guess the Lyme disease does. That professor from UC - davis sent me his research paper on the mice who had LD. They treated them with doxy and then analyzed some of their muscle tissue.

This is gross but the picture of the tissue under the scope showed some places where I suppose the Lyme Disease lived.

That picture makes me wonder about what the @#$% is going on in my shoulders, neck, sinuses, knees, hips, toes and two pinkies.

Instead of cortisone shots, why can't they just shoot an antibiotic in there. That way it's killed -- for a while at least!
Posted 11/25/2008 4:28 AM (GMT -7)

king1234 said...
Ralph- and he is a lot of work!

I loooove the name "Ralph"..... it was my grandpa's name - haha!


We'll get through today - Jennifer

06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,

Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 

"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs

 

Posted 11/25/2008 12:37 PM (GMT -7)

LOL yes, its such a basset name. Wish I could post pics here, you guys would laugh-all wrinkles and ears right now.

My joints bother me a lot, some days they crack more than others. Some days they literally crack 150 plus times a day. I NEVER had this issue till the pains started 5 months back.

----------------------------------------------------------------------

33 yr old female/GERD dx 3/07/Migraines with Aura/IBS

SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 

New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 

 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR

 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL

Posted 11/25/2008 5:11 PM (GMT -7)

Dowa said...
My shoulders are also very loose and they pop out, my thyroid is fine. I really cant figure out what causes so many of us to have the popping, crackling joints.  D

It may be related to buying a puppy and being pulled in all different directions for a years, bending over to wipe up "puddles", trying to move 50 lb. bags of kibble, etc. rolleyes turn rolleyes

We'll get through today - Jennifer

06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,

Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 

"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs

 

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