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Neurologist recommendation?

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Posted 12/1/2008 3:20 PM (GMT -8)
Hey Lymies,

Can anyone recommend a neurologist? I've been having wicked dizzy/vertigo spells--they last a few seconds and everything spins--pretty scary. I really think this is a Herx, but b/c they are so severe my LLMD doesn't want to take any chances and is referring me to a neurologist. Am bummed b/c they've decided to back off the Rifampin since if this is a Herx I guess it's too strong. I live in MD near DC--would appreciate any recommendations.
Posted 12/1/2008 4:39 PM (GMT -8)
Don't go to Dr. B in Tampa FL.... I don't know any nueros in MD.
Posted 12/1/2008 7:15 PM (GMT -8)
I am nearby you.

I saw a Neuro-Otologist for my vertigo. This guy is really good and kind. He is at Wash. Hosp. Center.
Dr. Dennis Fitzgerald.

dizzydoc.com

Also in Bethesda- a regular neuro recommended by my ENT is Dr. Glenn Harper.

http://www.painpoints.com/about/biographies/harper.html

My LLMD is in Rockville.

Good luck. I have the dizziness as well. Starting treatment on Wed after going over my test results.
Posted 12/2/2008 8:57 AM (GMT -8)
Hi LymeinMD,

I live in MD near DC, too. Who is your Lyme doc? I see Dr. M in Rockville. You can e-mail me through my profile if you want.
Posted 12/2/2008 9:36 AM (GMT -8)
need some z's

My doc is also Dr. M. How long have you been seeing him?
Posted 12/2/2008 2:02 PM (GMT -8)

I would be interested in a neurologist recommendation in the DC area as well.  I currently see Dr. J in Germantown as my LLMD.  But looking for a understanding neurologist that is not dismissive and arrogant for neuro symtpoms and testing.  I am fairly young (30s) and haven't gotten the time of day from current neurology practice.  Not looking for a LL Neuro (although would LOVE to hear of one) - just one that listens and tests and looks into things beyond "not sure why you have that but we are not concernd".  I have learned that even mentioning Lyme creates a stigma and thus I don't discuss with specialits anymore.

Thanks in advance!


Posted 12/2/2008 2:50 PM (GMT -8)
See my post above for a regular neuro.
My ENT said he was the doctor he sens people to who have hard to diagnose illnesses.
My friend really liked him when I recommended him to her. He spent a lot of time and listened. She was stung by a jellyfiah and suffered terribly with neuro symptoms.
Posted 12/2/2008 3:23 PM (GMT -8)
kitty,

I've been seeing Dr. M for 2 years. I'm currently stopped all treatments, vitamins, etc. to see where my body ends up (LOL).

How about you? Are you happy with him?
Posted 12/2/2008 4:27 PM (GMT -8)
Yes. I do like him so far. I have only seen him once and go back tomorrow for my results and discuss treatment.

He has some really good theories about the underlying infections and how they cause symptoms. I have been doing a lot of research on this. I am a microbiologist and we really got into the science of it all on my first visit.

I have met a few others who have seen him and are happy. My endo really thinks highly of him and I love my endo!

How long have you had Lyme? For me it has been 14 years undiagnosed, even after a bulls eye rash in 1994 following a camping trip!
Posted 12/2/2008 7:07 PM (GMT -8)
Thanks Kitty.  Have you seen the blog from LymeMd on blogspot?  He and a veterinary (microbiologist - I think - definitely in the lab a lot) have some thoughts that are probably of interest to you.

Posted 12/2/2008 7:10 PM (GMT -8)
Staris-

Yes, I do follow that blog. Is that your doc?

It is very interesting to read.

You are welcome!
Posted 12/3/2008 9:26 AM (GMT -8)
Yes - he is one of my two LLMDs.  Very thoughtful and caring doctor.  LLMDs come in a "variety of flavors" and I align myself with his thoughts on the disease and treatment.  In fact, I went to him b/c of the blog and wasn't disappointed.  Just getting started with im too.  Great thing is he takes some insurance.

Also visited Clongen which seems to be a great lab.

 

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