BABESIA TREATMENT?SYMPTOMS/HOW LONG

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captaindave
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 12/3/2008 2:31 PM (GMT -7)   
I had Lyme 18 mos ago, inadequate treatment. % deer ticks in June and went on Doxy for 3 weeks. One mos later BRAIN FOG. Positive for Babs. Have been on Mepron, Valtrex, Bactrim and Dr Zhangs protocol for 3 months. Still have brain fog, but comes and goes. Recent excessive saliva, and it tasts metallic, kind of. Anyone have feedback on how long this will take to get rid of the symptoms?

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 12/3/2008 5:39 PM (GMT -7)   

Hi captaindave, welcome to the board!

Is three weeks of treatment all you had for Lyme until now?  What dose of Mepron are you taking?  It is my understanding that Mepron needs to be taken with Zithromax, Biaxin, or Ketek to be effective.  Are you taking Artemisinin?  Some medications can cause a metallic taste.  I don't know if the ones you are taking can.

I believe that four months of treatment is typically the minimum for Babesiosis or re-treatment is often necessary; however, longer treatment is not unusual.  Sometimes it still needs to be treated more than once.  It can take time to recover especially if you have been infected for some time.

Have you been tested for the other co-infections: both types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma?  Are you being treated by a knowledgeable doctor?

Are you aware of the Jarisch-Herxheimer Reaction (herx)?  Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones.  When the antibiotics kill the bacteria, toxins are released making them feel sicker.  It can be very scary when it happens, but it is a good sign the antibiotics are working.  Although it can vary individually, many people experience this at the beginning of treatment and every three to four weeks.  During treatment, it is a good idea to document your symptoms daily.  One way to do this is to list the main symptoms you have each day and a numerical rating of their severity, from 1-10.  Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.


alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 12/3/2008 7:19 PM (GMT -7)   
Hi captaindave,
Just a note that I think Bactrim can cause a metallic taste in your mouth. Certain antibiotics do that. I found the only thing that helped cut that metallic taste (which was awful!) was consistently sucking on some kind of hard candy. Probably not good for you, but it was the only thing that helped!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

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hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 12/4/2008 3:58 PM (GMT -7)   
Biaxin definitely causes a metal taste. Drink pomegranite juice when this occurs and it will quickly abate.
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