Sorry I haven't been on in forever!

Hello healing well!,

Hello everyone sorry my mom (paininfl) and I haven't been on in so long. It is because we are done with our treatment, and my mom and sisters and I are doing wonderful!! I was just thinking about all of you and thought you would like to hear how we were doing. We all got out picc lines pulled in July of 08 and after we got our lines pulled we have had no reactions and have not seen any downfalls! Dr.C is our hero! We thought in the beggining of all this our lives would not change but a little bit. We were totally wrong! So if your in this position it will all be worth it in the end!!! I am so happy to see my mom doing so well it was heartbreaking through these times.....  Happy Holidays to all, and just know i am thinking about you all. We are doing great.

 

 

~Summer~

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Diagnosed with lyme 1/19/08. Mom passed lyme on to me and my sisters. Started IV treatment 3/18/08. Have helped 4 people diagnose lyme!

 

"Just know your future will get better and your not alone!"

 

I will do! I will try to post more and update and let you all know what is going on so you dont worry or wonder! I know i would wonder too if i were you! Thanks alfers!!

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Diagnosed with lyme 1/19/08. Mom passed lyme on to me and my sisters. Started IV treatment 3/18/08. Have helped 4 people diagnose lyme!

 

"Just know your future will get better and your not alone!"

 

There's a bell to ring when a doctor gets you well? Who is Dr. C and how can I get an appointment?

BTW, Summer -- THANK YOU! The best post ever.

JEANIEP-I did ring the bell we rung the BIG one it was an amazing feeling!

babylymers- I will say hi to everyone for you! How is your daughter doing?

HopingToFindACure- Heres my email LymeFamily@aol.com I am not sure your supposed to mention any doctors full name so email me about what you might need!

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Diagnosed with lyme 1/19/08. Mom passed lyme on to me and my sisters. Started IV treatment 3/18/08. Have helped 4 people diagnose lyme! July of 2008 got picc line pulled and ever since then have had no pain and doign tremendously good!

 

"Just know your future will get better and your not alone!"

 

Post Edited (grace 14) : 12/4/2008 4:14:44 PM (GMT-7)

Fantasic! A whole family! That is wonderful news! That is a first for me to read!
Do tell for those of us who do not know your treatment.

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2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

Marthas vineyard- We were born with it my mom passes it to us through the placenta and breast milk. I will email that doctor and let him know finally people getting it out there!! I do live in florida I will tell you our lyme story later tonight because its so long!

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Diagnosed with lyme 1/19/08. Mom passed lyme on to me and my sisters. Started IV treatment 3/18/08. Have helped 4 people diagnose lyme! July of 2008 got picc line pulled and ever since then have had no pain and doign tremendously good!

 

"Just know your future will get better and your not alone!"

 

Sierra!!!!

So what treatment are you on? ITS BEEN SO LONG!! Are you getting ANY betteR?

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Diagnosed with lyme 1/19/08. Mom passed lyme on to me and my sisters. Started IV treatment 3/18/08. Have helped 4 people diagnose lyme! July of 2008 got picc line pulled and ever since then have had no pain and doign tremendously good!

 

"Just know your future will get better and your not alone!"

 

This is great news, congrats to all of you

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Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.

If anyone would like the info. on Dr. C in the Tampa FL area, please email me directly.

Dr. C has many bells, but one gigantic old fashioned "dinner bell" (my grandmother in PA actually had one of these in her side yard - haha - maybe it's the same one that's in Dr. C's office!!?!!) Whenever anyone gets "well" or successfully completes treatment they ring that big ol' dinner bell. The dental office nextdoor must go crazy everytime that bell is rung! I told Dr. C that when I get well I'm not only going to ring that bell, I'm going to buy him an even BIGGER bell... or maybe just bring in the Liberty bell - haha.

All the best.

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Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade

^{06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril}

^{Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w} 

^{"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs}

 

Hi Summer- I had to have the first picc pulled because I got gallstones from the Rocephin. I had been doing great on it so I was really sad about that. Had my gallbladder out in June so now I am free to go back on it. I will be pulsing Rocephin and Zithromax this time. I just had my picc in yesterday and had my first infusion. Were you on any oral abx also? I do have Bart and Babesia. I treated Bart for 8 months and am still treating Babesia. I hope you all continue feeling great and thanks for writing back!

Kim

I took Levaquin for 2 months and Rifampin for 6 months for Bart. I am currently taking Malarone for Babs. I thought both were gone but I just had another positive titer for babs so I guess not...