Jelaine: I see that you have done abx-IV many times, what are the doctors telling you about why you are not getting well? For all of us newbies, I think we are expecting to "recover" in fact a freind of mine was just told by her LLMD that she should be CURED in 6 months. Why do you think some of us recover and some do not?? Thanks D
I truly believe that if the Lyme disease is caught early and treated early, that most people will recover. I guess "early" might be actually seeing or remembering the tick bite and then receiving abx tx within 1 day to maybe 2 months (I am completely guessing on this).
The only tick bite I remember is from when I was around 8 years old... although that doesn't mean I wasn't bitten again and I just didn't see the tick. When I did get ill in June of 2000, I was told it was "all in my head" until my first LD test came back positive... this was in August 2001. It took me 4 more mos. to find a doctor to treat me, and then it was 4-6 weeks of oral doxcycline. So I was sick for 17 mos. before I received any kind of treatment. I returned to work until 10/2002, when I had a complete relapse of all symptoms. I tested positive for Lyme disease again.... and the doctor asked me if I had gotten bitten again (umm NO - NO friggin' way - I inspect dirt).
So my belief is that I have chronic Lyme disease or as the IDSA likes to call it "In many patients, posttreatment symptoms appear to be more related to the aches and pains of daily living rather than to either Lyme disease or a tickborne coinfection." and then the guidelines go on to say we have chronic fatigue syndrome and/or fibromyalgia, etc. etc. I don't care what they call it, if these are the aches and pains of daily living, the suicide rate in this country alone would be around 50%.
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing. Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w
"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs