Posted 12/4/2008 8:30 PM (GMT -6)
Symptoms: 20 mos. ago started with Stiff Neck, Headache, Right Eye Blurryness, constant Nausea
Soon after, symptoms resolved and started having terrible Anxiety, which landed me to several Psychiatrists who couldn't get me well with Antidepressants, Antianxiety meds, etc. In all, I tried over 26 Prescription medications and they all made me sick, the kind of sick where your nauseated all of the time and it made the anxiety worse.
about a year in to all of this I started getting Short of breath for no reason. I was still convinced it was Anxiety as this is what they kept telling me. Here is a short video I made of the Shortness of Breath I experienced daily for the last 9 months or so: http://www.youtube.com/watch?v=dk9M9wVgD1k
I would get breathless just sitting still, but didn't have anxiety with it, then my heart would start to race for no reason. I was put on a Beta Blocker to slow the heart rate, but it didn't work. My heart rate at rest was about 110 and with any exertion would jump to 140's easy. Just yesterday, I went for a stress test and my heart rate went to 170 on the treadmill while just walking fast. I hadn't even began to run. They stopped the test and I could see the Question Mark in a cloud over the cardiologists head. He told me I had ideopathic tachycardia, which means a fast heart rate with no known cause. lol, I could have told him that.
Things really took a bad turn over the last two months:
Chronic fatigue, body aches, Major stiff neck at times, more eye pain, Tremors in my hands and an overall sense of nervousness. Night sweats, and return of anxiety at times. I never had the rash, or at least never saw it.
My Sed Rate was 115 from blood work drawn yesterday. Normal is 0-15. Not one other test is abnormal. Thank god I'm an RN and know a top notch ID Dr. who treats the symptoms and doesn't care about the labs. Nevertheless, he wants to do a Lumbar Puncture and a few more tests which will land me in the hospital over the weekend.
The ironic thing out of all of this is that I lost my 38 y.o. Brother to lung cancer exactly 2 years ago yesterday. I went out to his grave yesterday and cried my eyes out to him to find out what was wrong with me. Less than 24 hours later, I have a diagnosis and have started oral Amoxacillin 1500mg three times per day. Over the past 20 months, besides all of the medications I've tried, I've had the following tests:
Cardiac Catherization, multiple stress tests, pulmonary studies, neurology visits, upper and lower endoscopy, MRI of brain, CT of brain, CT of chest, Tons and tons of blood work, about 30 ER visits or more, 7 Psychiatrists, 5 psychotherapists. I'm sure there is more, but my memory has also been affected from all of this, so I'll leave it at that, but I think you get the idea.
I'm reading that once you start Antibiotics, you get worse before you get better. I can't imagine getting any worse. Can someone please tell me what this means for me. What gets worse ?
I want to end by saying , Don't give up if you think you have Lime Disease. I have at least a year, or so the literature states, before I will be better. I just pray that I get better no matter how long it takes. I want to take my kids to Disney World so bad and get back to life. Losing my brother and having all of this start shortly after losing him has made the last 2 years of my life a living hell. Amazingly, I was never suicidal through it all. I stayed strong, and researched daily until I found out what I had. My family thought I was nuts and obsessed. Well, obsessed yes, nuts, No. I wouldn't wish this on my worst enemy, but it would sure make a nice punishment for serial killers and the like.