I have to say, I have lyme, I believe in Lyme, I believe in CLD and I also believe lyme comes with neurological disorders, now having said that, I also believe the report that Jen showed has some truth to it.
But to paint all lyme sufferers with the same brush is like saying all people who collect welfare are lazy.
Since being on this lyme journey and since I was also dx with lupus, I have done a lot of research and spoken to ill people like myself.
I'm on msg boards for chronic illness, for fitness, for cooking, for naturopathic medicine and I can tell you, the most aggressive, hateful, mean and downright spiteful people are those from illness msg boards.
I do think there is some truth to that report Jen and it's VERY unfortunate, but there are always going to be dramatic sick people who dwell and "drown" in their illness that make other sick people look crazy.
I think some folks become familiar and comfortable in their illness and don't want to say they are well b/c then they would have to face change. Change is a tough thing to handle. Some sick people once well would have to go back to work, be social again and or just be happy and many people find illness easier than having to "live" again.
I also notice people are quick to blame anxiety/depression on illness. I've been having servere panic attacks since I was 19. I started to become physically ill at the age of 27. I was in and out of dr's office's but never got a dx. Which was a benefit since I could not "name" my illness.
Finally two year ago when my symptoms got worse, I was dx with Lupus, then lyme. My anxiety went through the roof. Why was that, because of the change (leaving my job, depending on others, feeling ill, dizzy etc) or because lyme all of a sudden took over my brain.
At my first LLMD appoint, within 15 mins, the LLMD said "You've prob had lyme since you were 19 when the panic attacks started"
HOW irresponsible to assume that after knowing me for 15 mins. She is a great LLMD, but is on the band wagon that every ache and darn pain is related to lyme.
My Dad has panic, my sister, my aunts etc. It's possible my anxiety is genetic or learned behavior since I came from a home with anxiety and depression. But then again, maybe it's not.
I'm in no way saying anxiety does not accompay illness, but not in all cases
My opinion on this report is conflicting.
The world breaks every one and afterward many are strong in the broken places