Keeping the faith - I can only assume what your daughter is going through having this disease at age 16. The bright spot (is there ever a bright spot?) is that she IS 16 and hopefully her youth and prior good health will help enable her to have a full recovery within 6 to 12 mos.
I got LD at age 35 and am now 44.... and I thought the "prime" of my life had been taken away. But over the years, it's the kids, the teenagers, the college students that really get to me... they should NOT have to go through this. It is an OUTRAGE that more is not being done about
this disease... ESPECIALLY for the younger ones... ESPECIALLY for the children, teenagers, young people.
In my LLDr's office, I saw a man in his 40's or 50's, he walked slowly and his knee caps were bright red, but him and his wife were so happy because he was finally out of his wheelchair, slowly but surely, and with physical therapy. They excitedly told me about
"going out to dinner" 2-3 times in the past month.... they hadn't been out to eat together in over 4 years.
In my very non-medical opinion, I would try 1 to 3 different oral antibiotic combinations for a period of 4 to 8 weeks each. If no improvement is seen, I would go for the IV's.... but that's just me. I'm sure the parents with sick children will chime in with a better perspective on this than I have.
Recovery does come... sometimes very slowly (refer to me - haha) but it does come.
All the best.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg,
Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w
"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs