My friends. I have not visited here for a while, I hope everyone is doing as well as possible.
I know that this is not a Morgellons support board but as I write, my head is reeling.
I called a dear friend of mine this evening, and when I asked her how she was doing she began to cry. She described to me that she has been suffering from ulcers/sores over her body and head for the last month.
She described a sensation as though being bitten by tiny insects, along with finding mysterious 'fibers' creeping out from her skin. She has been collecting these 'fibers' in a small test tube.
She has visited a couple of doctors, the first said allergies. The second said 'delusional parasitosis'! She returns to the second doctor on Friday. He prescribed her (get this) doxy for the ulcers. She reports some improvement, no 'herx' type reaction.
Tomorrow I am going to call my LLMD to see if he can give me a referral for a doctor to help her.
In the meantime, if any of you know of any reliable research / resources / websites / support forums or have any advice or experience with this I would very much appreciate it.
Speaking to my friend I did the best I could to reassure her and be as calm and collected as possible. But can I really tell my friend that 'good help is available' if this is indeed what is wrong with her? I now know that help is available for Lyme sufferers, but what about Morgellons?
I know that I cannot jump to any conclusions, but I am so concerned for my friend right now. I could never have dreamed that this would happen to someone close to me. It seems impossible. It is like a horrible nightmare that this can be happening. How could this be happening, first myself with Lyme, now my friend, if these illnesses are supposedly so incredibly rare?
Diagnosed with Tick-Borne Illness in August 2006. Currently symptom-free.
"The joy of life can be restored ... Don’t give up hope. There are answers, solutions, and assistance. There is life after Lyme."
"Why yes I did go 'Doctor shopping', and it saved my life."