Anemia, anyone?

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alfers
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Date Joined May 2005
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   Posted 12/16/2008 8:51 AM (GMT -7)   
Hi everyone,
I just saw my lymphoma doc yesterday for a check-up (I have a type of cutaneous lymphoma, but it's in remission). He's at a major medical center that owns several of the hospitals in my area. He told me that a blood test I had in August from a different visit to a doctor showed that I was anemic. Nobody had told me! And I've never been anemic before. He's redoing the blood test to see if he gets the same results. My hemoglobin count was 10, and the low end of normal is 12 -- so it wasn't very severe, but it was still classified as anemic.
Any experience with anemia here? Can it be another complication of late-stage lyme, or chronic disease in general? I seem to be getting more and more complications these days...
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

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Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 12/16/2008 11:58 AM (GMT -7)   
I have had anemia and was told at the clinic here that it is an indication of some kind of exposure to toxins, mine was mold (and now Lyme). It has to do with the way your body fights, dont really understand it entirely but they say it is not unusual in a toxic body to be anemic.  D

Razzle
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Date Joined Aug 2007
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   Posted 12/16/2008 12:01 PM (GMT -7)   
I've been chronically anemic for years. Don't know officially why I'm anemic (and the doctors I've seen all seem to blow it off as "anemia of chronic disease" and don't try to explain it further, or else just tell me to take iron pills, which I can't do), but I strongly suspect Lyme and/or Bartonella.

Antibiotics may also cause anemia as a side-effect, so you might want to ask your pharmacist if any of the meds you are taking can do that.

Good luck & take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


judy3
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   Posted 12/16/2008 4:50 PM (GMT -7)   
Hi Alfers I was wondering how you are doing, the only suggestion I have for you is to to ask to have your Ferritin tested, my feretin is 2, my doctor told me to take slow fe with vitamin C, I also take it with Folic Acid and hope my levels will go up, I know anemia is a symptom of Babesia but I dont have any other Babesia symtoms so I will just assume its due to my heavy cycles or.......???LD?

maggiemoo
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Date Joined Oct 2008
Total Posts : 56
   Posted 12/16/2008 11:41 PM (GMT -7)   
alfers-
 
It was my chronic anemia and intolerance to OTC iron that finally brought the dx of babesia.  My iron levels have been very low for the last 15 years and the docs just rationalized it as my heavy monthly flow.  When I did try various OTC iron supplements and then on to Rx ferrex, they all caused major abdominal distress and if fact the last dosage of ferex sent me to the ER.  
My LLMD who I hadn't seen for 4 years theorized that the low ferritin was from the babesia messing with my red blood cells.  Since the modality of iron is what causes me the problem, I now go to the hospital for IV iron.  MY Goodness, I felt so much better after just one dose!!!  My energy started to rise after 2 days and then stayed up for 3 days, then slowly went back down.  The 3 days where such a "blast from the past"!!! I had forgotten what it was like to move without as much pain, and keep a train of thought longer than a minute.
Tomorrow I'm scheduled to have another dose of iron and will follow every week for 6 weeks.   
As with the other comments, I think our feritin levels play much more importance on our overall health than just our energy.  Our bodies suffer in so many ways from being anemic and it's just overlooked too often.
maggie

alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 12/17/2008 6:16 AM (GMT -7)   
Thanks everyone! The LLMD I was seeing before thought I had babesia, but I didn't think so because I don't have a lot of the symptoms (and I kept testing negative for it). Ugh, I just don't know... Well, I guess I'll wait for these test results and then think about what to do.
Silly question, but what exactly is ferritin?
Maggiemoo, that's great how good the iron dose makes you feel! Good luck with your second one today.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

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JELAINEP
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Date Joined Sep 2007
Total Posts : 2017
   Posted 12/17/2008 6:21 AM (GMT -7)   
alfers - I had anemia on my second round of Lyme disease testing.... the horrible infectious disease doctor I saw (she's the one who yelled at me and told me there were "no ticks" in Florida and therefore "NO LYME DISEASE") even said, "I would be more concerned about the anemia and the blood found in your synovial fluid (from my knee aspiration) than any Lyme disease." And then she proceeded to never respond to my 23 follow-up phone calls. I have never heard from her since. Additional blood test performed by a LLDr. approximately 3 months later showed that the anemia had resolved.

I think I was probably "chronic" when these tests were finally done. Hope this helps.
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06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
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maggiemoo
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 12/21/2008 10:26 PM (GMT -7)   
I had a dose of iron on Wednesday and now I have a sinus cold! It's not fair! My body is reeling with energy from the iron and I can't enjoy it!!!
I'll have another one on Tuesday before Christmas, so maybe I'll get a real kick from that dose!
maggie moo

lhcook
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Date Joined Nov 2005
Total Posts : 840
   Posted 12/21/2008 11:07 PM (GMT -7)   
Me! I was on and off during college way before I knew I had Lyme and Babs. I am in normal ranges now.

Lucy

alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 12/26/2008 9:16 AM (GMT -7)   
Thanks everyone. My last blood test came back as a 12, which is the bottom end of normal. So I guess that one test was a fluke? Weird. I did read a bit about how chronic diseases can cause anemia...but it seems nobody quite knows why or how to treat in that situation. Anyway, I won't worry about it for now.
I hope you all had a nice holiday. I came down with the worst cold ever yesterday - I'm miserable!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 12/27/2008 1:41 PM (GMT -7)   
Gracie's mom, that's so funny, I never thought of that. I do use a cast iron skillet, but I don't cook a whole lot. I got mine for 10 bucks or so at the hardware store. It wasn't so great at first, but it's become pretty well seasoned by now and I LOVE it. I actually believe in using iron cookware because the non-stick materials can supposedly leach chemicals. Thanks for the recommendation, though!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

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dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/2/2009 9:12 AM (GMT -7)   
hi Gracie's mom! thanks so much for letting us know about the cast iron cook ware! This is great !! I never thought about iron cook ware although i know about the trick with the iron nail and the apple (stick an iron nail in an apple, the fruit's acid will make iron move into the fruit and - voila - the daily dose is ready)

nefferdun
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Date Joined Feb 2008
Total Posts : 900
   Posted 1/9/2009 3:21 PM (GMT -7)   
One of my friends has anemia. She also recommends cast iron pans for cooking. But another thing to consider is low B12 which is common with lyme and causes anemia. That is what caused hers (although she doesn't have lyme).
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