Hi all, I'm new to Lyme world although not new at all to health/disease related web forums as I have been participating on several thyroid disease related forums for the past 1 1/2 years as I have struggled to figure out how to get my thyroid meds adjusted so that I don't feel bad - I was DX'ed with Hashimotos in 2004. I'm a 41 year old man currently living in South Carolina.
Now it's looking like a major part of my problem could be LD. I am seeing an integrative medicine doc in NC who is convinced that I have LD and now, he says, we have labs to prove it. We did a CD-57 which came back at 44 (he says that it should be over 100) and we just repeated the Igenex labs which came back positive or so he says. I say repeat because I had them run almost exactly 2 years ago when I was first really starting to struggle with some arthralgias and my sister was struggling with SX even worse than mine - we believe that if we have LD we were exposed at the same time in the summer of 2003 when we were both eaten alive by some kind of bug living in our family's vacation home in northern MI. Neither of us ever found a tick or noticed the tell-tale bulls-eye rash but I understand that that does not even show up much of the time anyway. The Igenex labs I did then all came back negative. The labs that we just did a few weeks ago followed a month of Minocin/Zithro/Diflucan and there were some positives (listed below).
My main SX are joint and muscle pain (especially in the spine, knees, hips, back, neck, hands), daily GI upset (rumbling, bloating, gas, abdominal pain), fatigue, insomnia, depression, anxiety, floaters, sensitivity to light, sound and smells, dry and itchy skin and dry eyes. There are others that I'm not thinking of at the moment - oh yeah, add brain fog to that list - but these are my top 5.
My int-med doc wants me to go back on the ABX for at least 6 months - his regimen is Minocin and Diflucan on MWF, Zithro on Sa and Su and he wants to add weekly Penicillin shots. Actually, he wants me to go on the Marshall Protocol but I'm not ready to live in-doors for the next two years, for those of you who are familiar with the MP. My local doc who is a DO, and that I like, is going to disagree and not want me to do the treatment - I know, what's new about that, he's not a LLMD. I have to admit that I have not done enough homework on this yet but I intend to start reading up on it this weekend starting with the material on the Newbies thread. My sister, who referred me to this forum, is actually quite psyched that I got a DX but I'm having sort of a hard time coming to grips with it b/c I just spent the last many months thinking that my problem was my thyroid and adrenals, reading several books, religiously following listservs, adjusting meds, weaning off of meds (steroids), changing diet, giving up exercise, giving up social life (b/c I feel bad most of the time), etc. and I don't know if I'm ready for a year or more of hell taking ABX that are sure to absolutely wreak havoc with my GI, not to mention the herx if it works. Sorry, not trying to be a baby, but that's where I'm at right now. And I will have no support from my wife b/c she's pretty much through after the last several years of trying to figure out what is wrong with me and trying different treatments, and her hands are full with her mother who is dying from lung cancer.
Anyway, I'm posting my Igenex results below. Any input, suggestions, advice about the labs, my doc's suggested treatment plan for me, etc. would be much appreciated.
IGENEX IGM RESULT
**41 kDa. +
**83-93 kDa. ++
**31 kDa ++
**34 kDa +
**39 kDa IND
**41 kDa +++
58 kDa ++
**83-93 kDa IND