Busy as a Bee but feeling great!

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Martha's Vineyard Veteran Member Date Joined Jul 2008 Total Posts : 1119	Posted 12/20/2008 12:44 PM (GMT -6)
	Sorry for the absence. I had been thrown a few curve balls. My 5 year old, Lilly could not be treated in Az due to terrible Asthma probelms. So exhausted and scared for her I packed up and left back to Florida for Lilly's sake. Then when we got back to FL. we had the flu. Then two days later we had to fly to NYC and go up to CT to see Dr. J. so..and back to FLO. again ..all is well with her now and she has started her treatment with him instead. And able to stay in school. But she is on alot of stuff now. I feel very well, thank goodness or I would not have been able to travel like this. Or be able to take such good care of my lilly. My mind is clear. No fog. My migrain is gone. My fever is gone. My drive and memory is back. I can drive and cook again, and I can finish my sentence's. I do not feel 105 anymore. lol I am going to Texas for x-mas. Then back to Fl. to get my kids in school and then back out to Az to finish my treatment. I have 4 more weeks. I don't want to relapse and I am going to do what my Dr. tells me to do. They told me no more sneaking off and going home..lol So I have to make the commitement to finish. I still have my port in my chest. But I feel very well. Which is so very different from the last 4 and a half years. It is odd to feel well. But I am still saddened that this therapy is not available around the country for every one. So my recovery is bitter sweet. 2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame. We have fought it for 4 years to no avail. We all got it again this summer is Texas. I am now in treatment in Scottsdale Arizona at Envita. "The eyes cannot see for for what the mind does not know." Back to Top

kendal122 Veteran Member Date Joined May 2007 Total Posts : 1088	Posted 12/20/2008 6:41 PM (GMT -6)
	maybe some day they will come this way with there therapy.. Back to Top

hopingToFindCure Veteran Member Date Joined Nov 2008 Total Posts : 759	Posted 12/20/2008 7:05 PM (GMT -6)
	Awesome news! Just in time for Christmas!!! Back to Top

Martha's Vineyard Veteran Member Date Joined Jul 2008 Total Posts : 1119	Posted 12/21/2008 11:11 AM (GMT -6)
	Kendal they are working on it. They have it in the works to open up all over the country, so a little bird told me.. And really by then I think that the insurance companies will prefer this treatment for it has quick results and does not cost them alot of money. Since it is all about politics and money. 2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame. We have fought it for 4 years to no avail. We all got it again this summer is Texas. I am now in treatment in Scottsdale Arizona at Envita. "The eyes cannot see for for what the mind does not know." Back to Top

Martha's Vineyard Veteran Member Date Joined Jul 2008 Total Posts : 1119	Posted 12/21/2008 11:15 AM (GMT -6)
	Franco, How are your boys doing now? What co- infections did they have? How did you feel about DR. J? I loved him. Like a grandpa.lol I just sat there in awe of him. His gentle nature and his way with my 5 year old. He was so smart, yet laid back about it. Loved him. And Lilly liked him too. It is not often that a small child speaks up to a Dr. and talks with them. And she was smiling for most of the time. Until he wanted to do blood work...lol Then she wanted to leave....:>) Marie 2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame. We have fought it for 4 years to no avail. We all got it again this summer is Texas. I am now in treatment in Scottsdale Arizona at Envita. "The eyes cannot see for for what the mind does not know." Back to Top

mixa New Member Date Joined Aug 2008 Total Posts : 10	Posted 12/21/2008 3:23 PM (GMT -6)
	So glad you are doing fine !!! How is Lilly? She and my girl were on amoxi last summer at the same time (in August) What symptoms Lilly had so you decided to take her to Dr.J. All the best M Back to Top

bablymers Veteran Member Date Joined Oct 2006 Total Posts : 1458	Posted 12/22/2008 12:52 AM (GMT -6)
	Wow, Great to hear the good news you are feeling better! Thanks for sharing with us. Best wishes for continued success! bablymers mom Back to Top

Deejavu Veteran Member Date Joined Aug 2005 Total Posts : 4427	Posted 12/22/2008 7:14 PM (GMT -6)
	Marie aka MV, So glad to hear from you and that you are doing better! Keep up the good work! Oh, I keep forgetting to tell you that Dr. Jernigan (the protocol I followed) has a blog and mentions this German Medicine and Dr. Gerd Hamer so I thought of you. Is this the same doctor that you talked about? http://davidjernigan.blogspot.com/ http://www.germannewmedicine.ca/ Denise It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing This song is about my years with chronic lyme since 1995 and being in remission for over 3 years: http://www.youtube.com/watch?v=0Fd6Kyf8mjo&feature=related Back to Top

sojourner Veteran Member Date Joined Apr 2006 Total Posts : 1173	Posted 12/24/2008 12:23 AM (GMT -6)
	Dear Busy As a Bee! First of all, u r delightful ....... and quite forgiving I will look forward to another chat and a real meeting one day. My family voted and Heth said 'next time, one of those presents will be for Lilly and Miss Martha!" I am most grateful that she is responding and that you have some answers and a plan and that Dr. J is watching over her care. So glad that you are doing soooooo much better. Take care. I'll be praying for you. Stay in touch. When all is settled, Heth would like to chat w/you ie: design shop talk. Blessings from the sweet to the bold! Sojourner! "God loves with a great love the man whose heart is bursting with a passion for the impossible." ~booth www.stylebyheatherrose.com -click "Lyme testimony" and "Lyme Disease" for a panoramic view of the truth. Lyme disease - coming to a tick near you! Back to Top

Martha's Vineyard Veteran Member Date Joined Jul 2008 Total Posts : 1119	Posted 1/7/2009 9:05 PM (GMT -6)
	ah thanks guys....sob, gulp....lol...:>) sourjourn it was so nice to see you, and next time we sick folk will have name tags on...lol and a good nights rest would be ever so nice, no? I loved Dr. J, and Lilly is doing much better. He thinks that a co infection, babesiosa has been her biggest problem. so we are working on that one now. I am back in Az now. Just got in last night. Not thrilled mind you. I am home sick. But I must finish. And really have only 4-5 weeks to go. I really feel good and didn't want to come back for more. But that would not be wise. And so I am trying to be stronge and miss my kids and home. But I am here. I would love to talk to your daughter any time about fashion and design. I am sure that she will be a great designer one day. write to me direct I want to ask you something. xoxo 2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame. We have fought it for 4 years to no avail. We all got it again this summer is Texas. I am now in treatment in Scottsdale Arizona at Envita. "The eyes cannot see for for what the mind does not know." Back to Top

hopingToFindCure Veteran Member Date Joined Nov 2008 Total Posts : 759	Posted 1/15/2009 7:26 PM (GMT -6)
	Hi marie ! Glad you're going back into the battle as it's the only way to win! Scottsdale sounds like a wonderful place to heal. East coast is FREEEEEEEEEEEEZING! KeepHope, I hope you're getting better and better. Back to Top

Martha's Vineyard Veteran Member Date Joined Jul 2008 Total Posts : 1119	Posted 1/16/2009 12:14 AM (GMT -6)
	Hey, I am here I don;t know what week it is. I am geting the hard treatment. 6 hours a day with the iv in my port, not funm, it knocks me on my ass. I come home to sleep, and the dayd flys by. I have another long day tomorrow of it 6 hours again. Then back home to bed for the rest fo the day. I am too tired. will see how I feel this sat and sun. but then monday I have to go back to the hospital to get my port fixed or replayed. not happy about that. but seems that is has bent somehow. so the blood will not flow out. and I want to get my ozone therapy's done. over and out..I am going to bed....lol 2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame. We have fought it for 4 years to no avail. We all got it again this summer is Texas. I am now in treatment in Scottsdale Arizona at Envita. "The eyes cannot see for for what the mind does not know." Back to Top

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