Sorry for the absence. I had been thrown a few curve balls. My 5 year old, Lilly could not be treated in Az due to terrible Asthma probelms. So exhausted and scared for her I packed up and left back to Florida for Lilly's sake. Then when we got back to FL. we had the flu. Then two days later we had to fly to NYC and go up to CT to see Dr. J. so..and back to FLO. again
..all is well with her now and she has started her treatment with him instead. And able to stay in school. But she is on alot of stuff now.
I feel very well, thank goodness or I would not have been able to travel like this. Or be able to take such good care of my lilly.
My mind is clear. No fog. My migrain is gone. My fever is gone. My drive and memory is back. I can drive and cook again, and I can finish my sentence's. I do not feel 105 anymore. lol
I am going to Texas for x-mas. Then back to Fl. to get my kids in school and then back out to Az to finish my treatment. I have 4 more weeks.
I don't want to relapse and I am going to do what my Dr. tells me to do. They told me no more sneaking off and going home..lol
So I have to make the commitement to finish.
I still have my port in my chest. But I feel very well. Which is so very different from the last 4 and a half years.
It is odd to feel well. But I am still saddened that this therapy is not available around the country for every one. So my recovery is bitter sweet.