"If you don't have your health, you don't have anything." I never fully appreciated what that meant until I got Lyme disease.
I am very fortunate. I have good disability and medical insurance through my former employer and my Medicare was approved (6 years after applying) and my husband and I are financially comfortable. BUT, all of that only made it easier to pay for all of the testing and medication.... it did not make it easier to finally get tested for Lyme disease, it did not make it easier to find someone to write the rx for 1 bottle of doxycicline, it did not make me well.... and, with this disease, having all of that on one's side makes no difference. I was still treated horribly by doctors who don't believe in Lyme disease or who don't believe Lyme disease exists outside of Connecticut. I still had to fight for every bit of antibiotics that I have received. If someone had told me that I would be spending my 30's (and now 40's) fighting for antibiotics, I would have laughed.
I appreciate very much what I have. My heart goes out to all who struggle, day to day, with the expenses of this disease. When I get well, I am going to be the loudest activist for Lyme disease testing and treatment - Pat Smith, watch out!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has. - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg,
Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w
"How much more can I take?", song - http://www.youtube.com/watch?v=5gHiR1xeOSs