I read your post and sorry I do not have an answer for you concerning the itching your daughters problem, however part of your post about the loss of your daughters hands is the same problem my husband is experiencing. He has lost almost 100% and has just started therapy. He has a lot of atrophy in both hands. This was his first symptom. (weakness in his right hand) It took a year to get correct diagnosis thus the loss of movement. He is on IV Rocephin now and has seen slow improvement. We know one other person with the same symptom. How long has she been on treatment? Have you seen any improvement. Would appreciate hearing from you. Bev