Has any one had the annoying neck pain? and if so what did you do?

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kendal122
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Date Joined May 2007
Total Posts : 1088
   Posted 12/31/2008 9:13 AM (GMT -7)   
Thanks,

virginialady76
Regular Member


Date Joined Sep 2008
Total Posts : 22
   Posted 12/31/2008 9:54 AM (GMT -7)   
I wouldn't call my neck pain annoying cause it is down right excruciating at times. The pain and pressure extends from the neck updward to my head and down my shoulders and spine. It comes and goes. Sorry I'm not a verteran member so maybe they can give some good suggestions for relieving the pain but atleast you are not alone. :-)

kendal122
Veteran Member


Date Joined May 2007
Total Posts : 1088
   Posted 12/31/2008 10:12 AM (GMT -7)   
virginialady76, thats how it feels.. Thanks,

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 12/31/2008 11:05 AM (GMT -7)   
Mine is SO crunchy, other people can actually hear it. I have the exact pain, in the neck, head, shoulders and down the spine. I can say for me it definately is not a herx as I am not on any medication. Hot baths with epsom salt is my relief, temporary but it helps.  D

woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 12/31/2008 11:08 AM (GMT -7)   
My daughter made a heating pad that is long and narrow to put around my neck. I think she filled it with buckwheat. A few minutes in the microwave is all it takes to heat it up. Really helps to relieve the discomfort. I'm sure that there is something like this commercially that you could pick up at the drug store.
I totally understand. The good news is that my neck pain lasted for about three month but now it is now gone.
9/28/08 - 11/8/08 100mg Doxy b.i.d. 42 days
11/5/08 - 11/20/08 Salt/C, grapefruit seed extract, COQ10, anti-inflammatory herbs with cat's claw & omega 3.
11/20/08 -> reduced Salt/C, omega 3, Acidolphilus and Saccharomyces(friendly yeast),low carb, no wheat, no alcohol, no yeast, no caffeine, no sugar.
Ceftin 500mg, 2x per day; Plaquenil 200mg, 2x per day; Mepron 750mg, 2x per day; Zithromax 500mg, 1x per day.


marylandgirl
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 12/31/2008 11:41 AM (GMT -7)   
kitty- I just started mino this past weekend and I am having vertigo too.  I can't tell if it is a herx or a reaction to the mino.  I also have a headache in my eyes (if that makes sense) and the back of my head.  I would love to know if this was from the medicine or if the drugs were working.  I'm still skeptical of the whole thing so it's frustrating to not know for sure.  All the side effects of these drugs are supposedly what you would feel with a herx!

marylandgirl
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 12/31/2008 12:37 PM (GMT -7)   
Kitty--  Vertigo was my first and most severe symptom.  It slowly went away while I was seeking a diagnosis, but it is back since I have started the mino.  I am taking 100mg a day of the mino and 500mg of amoxicillin a day.  I am seeing a dr. in Germantown, but won't be there for another 4 weeks.  Seems like our symptoms are similar.  Did you have vertigo to start with?  I was afraid that this is how I would react to the medicine!

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 12/31/2008 1:00 PM (GMT -7)   
OK. So.....since you and I both have vertigo as a main symptom, maybe the mino really is stirring it up and making it temporarily worse. I hope that is the case and I know the doctor will agree.

Mine started in 1994 after a camping trip to NC and a bulls eye rash. 2 months later- swollen knees that improved and then I was hit with a severe vertigo attack. The dysequalibrium from that lasted a few months and I was seemingly better. Little did I know!

In 1997, I again had a severe, drop attack of vertigo followed by 4 months of dysequalibrium. It was then diagnosed as Meneire's Disease, though the meds- diuretics- never helped.

In June 2006, I had my 3rd vertigo attack. Was treated with diuretics and STEROIDS! I have steadily gained more neuro symptoms and the dysequalibrium continues unabated. This last flare has lasted 2 1/2 years now and I blame the steroids. I lost my mind last summer and needed psychiatric care and meds for a while.

This dizziness has caused me to not be able to work more than a few hours at a time, if that. I am lucky to be an "on call" microbiologist and I have a doctor's note from my endo who originally dx'd me and referred me to my current doctor. My thyroid is messed up further due to the Lyme, according to my doctor. He is specking to my endo during my appt with the endo on Monday.

Since starting the mino, I have also had up and down body temps- 95-99.5, and occasionally, a high heart rate of up to 132 just sitting here. Thankfully, it only lasts a few minutes. Have you had anything like that in addition to the vertigo?

I was also fearful of mino due to the vertigo. My doctor said he hasn't had anyone complain of that, but I think he didn't want me to assume ahead of time that I would be dizzier. My experiences have been so bad with doctors and meds over this 14 years, that I tend to think the worst will happen. He told me to try to be positive. I get that, but it is hard.

I will try to add my home e-mail to my profile if you want to keep in touch.

I am assuming your doctor is the one with the blog??

~Kitty

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 1/2/2009 7:21 PM (GMT -7)   
Was just reviewing Burrascano tips and hints on Lyme disease and saw this on vertigo

ESSENTIAL FATTY ACIDS: (required)
Studies show that when EFAs are taken regularly, statistically significant improvements in fatigue, aches weakness, vertigo, dizziness, memory, concentration and depression are likely. There are two broad classes: GLA (omega-6 oils) and EPA (omega-3 oils), derived respectively from plant and fish oils. This is what to take:
Plant Oil: Use a refrigerated product of mixed omega oils obtained from the local health food store. Take one to two tablespoons daily. May be mixed with food, put on salads, etc.
Fish Oil: Use “Marine Omega” by Pharmanex. Use four daily, taken on a full stomach (this brand is required).

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 1/2/2009 8:32 PM (GMT -7)   
Thanks. I have been taking a good quality Omega 3 product, but not at this dose.

I will ask my doctor. I know omega-3 can increase clotting time and I possibly have a coagulation factor deficiency. Waiting for tests to come back.

Are both recommended or one or the other? I wil review his guidelines again.
14 years undiagnosed Lyme. I had a bulls-eye rash following a camping trip to NC in 1994. Swollen knees and replapsing and remitting vertigo followed for the next 14 years. All Lyme tests negative. Could possibly be B. lonestari due to being bit in the South.
Just began treatment with low dose Minocycline and Benicar.


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 1/2/2009 9:10 PM (GMT -7)   
Not sure what coagulation deficiency is -- sorry.

One other thing to note is that our American diets are heavy on the Omega 6. So, Omega 3 is possibly all you need to take.

I have purchased fish oil and it is "pure" supposedly. Still I worry about mercury. On top of Lyme etc. !

I feel I cannot afford any more "set backs"....

Thoughts?
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