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ShelM
New Member


Date Joined Oct 2008
Total Posts : 12
   Posted 1/2/2009 10:11 PM (GMT -7)   
I have been looking at this board for awhile now, but this is my first time posting. I have lyme and bart and I have had it for the last two and a half years. I have been iv zithromax for 2 months and just started iv rifampin 2 weeks ago. Since I have started the rifampin I have been herxing really bad. I have thrown up everyday and I can't seem to kick my nausea. I take Dramamine and zofran and recently I was just prescribed a nausea cream the I apply on my wrist. Nothing is helping and I cant even sit up without puking. Does anyone have any advice for this? It is absolutely unbearable.

I am looking for some secret...besides all the normal tricks like ginger or saltine crackers. I feel like I will try anything.

ShelM
New Member


Date Joined Oct 2008
Total Posts : 12
   Posted 1/2/2009 10:39 PM (GMT -7)   
Also should I be worried if I get no blood return from my picc line?

ShelM
New Member


Date Joined Oct 2008
Total Posts : 12
   Posted 1/2/2009 11:36 PM (GMT -7)   
Wow thank you for all of these suggestions. It is nice because I feel so hopeless and believe I will be throwing up for the rest of my life. I have type one diabetes and gastroparesis so it has caused be some major problems. I am going to see my doctor this Sunday so it will be nice to bring these suggestions up with him. Hopefully he feels positive about them because even some relief sounds wonderful.

I don't know much about bart because when I first saw my LLMD in Sep of this year he suspected I had it but was not treating it at the time. So when I saw him a few weeks ago my labs came back positive for it and he says that the Rifampin is treating it. So I have not much research about it and I am learning a little bit more everyday, but you are right it is very nasty and it is kicking my butt.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 1/3/2009 8:03 AM (GMT 0)   
I've struggled with a lot of nausea and have found a few things helpful (other than the usual ginger/soda crackers/etc.):

One thing that may help is a homeopathic remedy called Bryonia Alba (NOT the herb itself) that helps to treat nausea from sitting up. I keep this remedy next to my bed so I can just grab it and take some then wait about 5-10 minutes and try to sit up. It has been very helpful for me. I get my homeopathic remedies at a local health food store but can also be ordered online (I use abchomeopathy.com ~ I have no financial connection with this website). I also use homeopathic Ipecac. (NOT the syrup itself) to help with nausea/vomiting.

Another thought is motion sickness wrist bands - these are wrist bands that stimulate an acupuncture point on the wrist to reduce nausea. I got a set at a local drug store (no prescription needed - they're over-the-counter).

And you might ask your doctor about stomach motility medications. Reglan and Domperidone both promote normal stomach emptying and also reduce nausea. Domperidone must be obtained from Canada or a compounding pharmacy, but it has fewer side-effects than Reglan.

Here's a link to the "Bell's Palsy of the Gut" article: http://www.thehumansideoflyme.net/viewarticle.php?aid=62
 
about the PICC line:  Yes, no blood return means something has caused a blockage of the PICC line.  Are you using a heparin lock flush after each time you use the PICC line?  You might want to contact your doctor's office or the home infusion company who does your dressing changes (unless you do your own dressing changes) and ask about this.  One trick I learned with my PICC line is to hold the arm with the PICC line in it up over my head (like raising your hand in school) for about 3-5 minutes.  This maneuver can sometimes help release the blockage or reposition the PICC line; I have always had this method work when my line quits flushing and/or quits giving blood return.
 
I hope this helps - take care,


-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line).

Post Edited (Razzle) : 1/3/2009 1:08:08 AM (GMT-7)

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