Hi Leslie-I just wanted to wish you and your husband a Happy 2009 and hope that we all can find the road to recovery. I am very happy to hear you are doing so well off the abx. It just seems as though I have been on these meds long enough and if I am not well then I don't think it is going to happen.
I have been going through I guess a Rocephin herx. The fatigue was brutal as I couldn't even leave my bed. It was exhausting to walk from one room to the next. I am on day 11 of this and it is wearing me down. I want to quit treatment. My picc I believe is bad and since my doctor here was on vacation last week they couldn't help. So now I have had extreme soreness for 2 weeks but am seeing him on Tuesday. I am just not sure what I want to do.
Has your husband had any improvement on the Rocephin? You know I still have in the back of my mind that something else is going on and maybe I do just have CFS which of course abx will do nothing for. My right leg has now begun to burn, twitch, have currents running through it.
I spoke with John briefly last weekend and he just told me to detox but I am not sure he realized I was in such rough shape.
I hope your husband is feeling some glimmers of hope in his recovery. I really feel as though I am at a dead end. I will keep you posted on what happens and what I decide.
My son is getting married in October (we just found out) and I really wanted to be well. Take care and please keep in touch.