a doctor i've been seeing

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Veteran Member

Date Joined Nov 2008
Total Posts : 759
   Posted 1/3/2009 3:06 PM (GMT -6)   
Kind of bummed me out. This doctor also has Lyme.

I asked the doctor once about recovery etc.

The reply was it never goes away. You always have it.

I guess it's true. But it does make me weepy.

Veteran Member

Date Joined Nov 2006
Total Posts : 667
   Posted 1/4/2009 2:43 PM (GMT -6)   
He said that because he is not a true LLMD, he cant even cure himself, I had a doctor that told me he had LD 4 times, I belived him for a while but he treated me with very mild drugs and after 2 months I realized that how can he treat me if he cant treat himself?

Regular Member

Date Joined Apr 2008
Total Posts : 266
   Posted 1/4/2009 3:06 PM (GMT -6)   
It may be true that we will always have a few cysts or spirochetes but I do believe we can become symptomless.

He may have said that if he wants to leave the back door open when he gets tired of dealing with patients he may say that's the best it'll get for you. I don't know. To be fair he is right in saying it doesn't go away. This is the pessimistic way to look at it tho. Once you've got lyme there is no way to know if it is all gone. But I think many of us believe in remission which is no symptoms.

So I am inclined to side with judy3 on this. He may be following a non-llmd approach for himself and maybe you. Do some research and keep up with what he is prescribing you. We all deserve the best treatment out there.

But DON'T get bummed. There are too many of out there with optimism. We'll share some of ours with you in your down times.

chief #7
Regular Member

Date Joined Apr 2008
Total Posts : 124
   Posted 1/5/2009 5:27 PM (GMT -6)   
He is weak in my opinion. I believe our bodies can rid themselves of this bacteria. Do everything it takes to get yourself better and don't ever give up.


Veteran Member

Date Joined Sep 2007
Total Posts : 2017
   Posted 1/5/2009 7:34 PM (GMT -6)   
It's a long road....
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs

Regular Member

Date Joined Apr 2008
Total Posts : 366
   Posted 1/5/2009 8:30 PM (GMT -6)   
Most MD's do not practice hollistic health treatment programs. I think very few, if any, late stage LD patients will ever become asymptomatic without paying equal attention to absolutely all elements of our health, both physical and mental. I'm afraid most physicians believe that if prescription antibiotics do not "cure" LD, then LD cannot be cured. How foolish.

Personally I didn't even begin to notice marked, consistent improvement until I began to regularly engage in rigorous exercise, consistently practice a very low sugar, low GI only carb, and zero gluten diet, and take the right vitamins, minerals and herbs in the necessary dosages.
And OMG none of these are offered by our good friends at Lilly, AstraZenica, et al.

Veteran Member

Date Joined Jan 2007
Total Posts : 2446
   Posted 1/15/2009 10:01 AM (GMT -6)   
chief #7 said...
He is weak in my opinion. I believe our bodies can rid themselves of this bacteria. Do everything it takes to get yourself better and don't ever give up.

x 100
No one knows how the illness works, so nothng is written in stone and dr's are not the "final word"
Nothing is impossible when you believe
                                                Mod: Lyme forum  
My beautiful inspiration
The world breaks every one and afterward many are strong in the broken places


Veteran Member

Date Joined May 2005
Total Posts : 2671
   Posted 1/15/2009 10:15 AM (GMT -6)   
I think there is real controversy out there in the lyme community about whether or not it can be fully cured (though most do seem to believe you can become asymptomatic...but need to always be vigilant about it). I don't think it's fair to say he's not a true LLMD -- many of the top-rated LLMD's in the country believe lyme is a chronic illness that is impossible to fully cure.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum

Veteran Member

Date Joined Jul 2007
Total Posts : 715
   Posted 1/15/2009 12:28 PM (GMT -6)   
I go to one of the top docs in NY and he does not use the word cure..he said there is no way of knowing if all the spiroketes can be eradicated from the body. Their goal is remission and after being sick for over 4 years I believe him. I will never give up but as time goes on and I have been on so many treatments with not much relief I am praying someone comes up with a cure.

Regular Member

Date Joined Jul 2007
Total Posts : 478
   Posted 1/15/2009 2:09 PM (GMT -6)   
So, has anyone out there been "cured", or remission? Can I regain good health? CAn I feel better?

Veteran Member

Date Joined Nov 2008
Total Posts : 759
   Posted 1/15/2009 8:30 PM (GMT -6)   
Gosh I sure hope so stutterbug! I am feeling better but I have been developing pain this week in my neck. My neck is VERY crunchy too.

I hope it goes away, but does crepitus ever reverse itself? Who knows.

Chief and peacesoul -- thanks for the inspiring posts. They really help. Doctors should never take away your hope.

Regular Member

Date Joined Sep 2008
Total Posts : 293
   Posted 1/15/2009 9:48 PM (GMT -6)   
hello hopingtofindcure do you have this problem with your dr at all.....my dr is a LLMD and he had lyme himself and he told me that it should only take me 6 months to get better since i havnt had lyme for a long time(only 3 months b4 i dot diagnosed, so we think) he said i am not a bad case and should be beter soon and then doesnt spend much time with me.. i iam on doxy and cef and currently taking a B-complex, noni, and melatonin suplement...also a seditive at night to help me sleep that the dr gave me.....I just feel that if i dont do natural with abx i am never going to get better....

"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
ADHD/anxiety/depression// celexa 20mg

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