This is probably going to be controversial but I feel strongly as adults it is our right of choice. If all else fails as it has for me and you choose this route please confirm my information with your own research or better yet consult a MD. I am not a MD but rather a Lyme victim that has done years of research on the topic. I have slipped farther and farther into disability over the years as I was undiagnosed, misdiagnosed and even swept under the rug and ignored by countless dr's. My doctors watched me get sicker and sicker while they did next to nothing or told me I must just be depressed. I wish they could be held accountable as I now know if I were to have gone on early antibiotics in the beginning it would never have got this far along. For some this is a matter of life or death, if we continue to ignore our disease we will end up a complete cripple or even dead. My dr's won't give me more then 2-4 weeks of antibiotics for late stage Lyme and every time I go on them I get better only to relapse when I stop taking them. I am on disability and cannot support myself. I am on state insurance and cannot afford a LLMD because they do not take my insurance.
I want to dedicate this post to you guys that have successfully treated yourself and what has worked for you with a focus on antibiotics. If you don't already know antibiotics have the highest proven effectiveness known in the Lyme world. As you may or may not know you can now buy prescript
ions online without local dr approval (google it). You can now have more personal responsibility over your own body in the event where all else has failed. I don't recommend going this route for most but for some it is the only option left between recovery and a wheelchair. I have just started on long term antibiotics and I will share what I have learned. This is for information purposes and anytime you take drugs there is risks involved so I suggest you first try and consult your MD or at least be under supervision of one. If you experience any kind of allergic reaction or abnormal reaction you should seek medical treatment asap. Most of this stuff is just common sense but it has to be stated.
I have found that early-mid stage Lyme is most commonly treated as follows:
Doxycycline (Oral) OR Ceftriaxone (IV for late stages)
Amoxicillin (Oral) or Penicillin (IV for late stages) can also be used but are less common and more of a secondary option.
Doxycycline is taken at 100MG 2-3 times a day. 2 times for early stage and 3 times a day for later stage. The treatment length can also vary and is a matter of opinion. While early Lyme is usually 2-4 weeks duration mid-later stage Lyme treatment can be up to a year or even more when going the long term route. Amoxixillin should be taken at 500MG twice a day orally. The duration of treatment is similar to Doxycycline. Typically you will be prescribed Doxy for a month and go from there based on your progress. It is usually sufficiant for many early sufferers. For the IV dosing & treatment duration refer to the URL below.
There are also more aggressive antibiotic combination's that some LLD's use for late stage or resistant Lyme. This is commonly used when one alone is not working. It is based on opinion and it is outside of the approved treatment plan. Such combination's would include taking both Doxy and Amox together at the same time. Just remember with more medication there is also more risk.
My treatment plan is referenced from Clinical Infectious Diseases 2000; 31(Suppl 1):S1-14. and from Wormser, GP. N Engl J Med 2006; 354:2794-801.
Check out this site for more info http://www.aldf.com/raad.shtml
If you would like to add to my information or correct it please message me. What you do with this information is up to you. You may use it to see if your doctor is on track or if your doctor is not willing to give you long term antibiotics (some will not) you can even order them online now-a-days. Lyme is very serious, don't let anyone tell you that 2 weeks of antibiotics for mid-late stage Lyme is sufficient. Your future is on the line and the earlier the treatment the better.
Good luck friends.
Post Edited (SickInCT) : 1/4/2009 10:41:49 AM (GMT-7)