Question for you with neurological lyme

hi Dowa...my LLMD gave me Cefdinir with my doxy to help me...cause i was studdering and had brain fog and forgetful and emotional...i noticed a big difference with the combination of drugs and i am happy with it...but i also messed up my meds and combined drinking with it and now i took a step back...but also i am on celexa which helps me with my anxiety more than with my depression...hope this helped....jennie :0)

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"I will not let Lyme controll my life i will controll my own life"

lyme since June 08

meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month

starting 10/3 doxy100mg // omnicef 300mg

 

ADHD/anxiety/depression// celexa 20mg

I have improvement with oral abx but still have memory problems and brain fog. It was worse before. What are the drugs you are using Jeminij and others who may respond? I took doxy for two months, then Ketek for 2 months, two weeks and one week (herbs between) and now doxy again.

I was diagnosed in April 2004 after having the disease for roughly 7 yrs.  I was a mess, of course diagnosed with everyhting else under the sun.  When I finally was diagnosed, I took 2 oral antibiotics, but after 5 months I did 4 penicillin shots a week until January 2005.  hat did it for me.   All along taking Levaquin.  It was miraculous.  Never did the IV.  I continued on oral antibiotics for another 18 months after that.  I have been med free since and am doing very well.  Still have a few neuro residuals like severe headache, but compared to how I was, I am great.

Hi Dowa,

You already know my story - probably had lyme for at least 8 - 10 years or maybe longer before I crashed. Many neuro symptoms - stuttering, memory and cognitive changes, bad SPECT scan, emotional changes, muscle spasms, headaches, difficulty walking, and so many more.
Started with orals - a little improvement but not much. Long IV treatment and I am pretty good. I see the doctor next week and we will probably remove the PICC and start orals.

I didn't know that it would be as long as it has been but I had a tough case of babesia and bartonella in the past - that made it take longer.

I know that IV's may not be the direction you want to go so I think that IF you are going to do antibiotics (and I think you should seriously consider it because I have been concerned about you and the questions you have asked indicate that you may have neruoborreliosis) start with the orals.

Maire's port is nice (no bandage changes, showers are easier) but you have to have a nurse administer the the drug - you can't do it yourself.

Have you found a good doctor yet?
Take care and I think of you.
bcaring