Reversing Symptoms?

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Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 1/4/2009 11:30 PM (GMT -6)   
Hi's been a VERY long time since I've been here...

I haven't been doing anything - including getting retested or starting any new protocols. I guess the only thing that's truly been happening is the seemingly inevitable decline of my health.

My cognitive problems are so legs, feet, toes, arms, hands, fingers all only work for so long before they just give out. It's like they only have a certain amount of energy, and then my brain said **** you - I'm not helping you out anymore.

I'm considering getting retested (for the third time) to see if what I have is really lyme or not...I had some positive lyme specific bands...but not enough to be diagnosed.

I'm wondering if anyone has seen symptoms disappear...or if you can only halt progression...this is a huge question for me...I'm ready to throw in the towel...more ready than I ever have been before.
"When you come to edge of all the light that you know, and are being forced to step out into the darkness of the unknown, faith is knowing that one of two things will happen: either there will be something solid for you stand on...or you will be taught to fly..."

Regular Member

Date Joined Nov 2008
Total Posts : 157
   Posted 1/5/2009 6:06 AM (GMT -6)   
You need to see a Lyme dr asap! The 2 Lyme tests you had done the Elsa and the Westernblot are NOT accurate when returning a negative. You can and will be diagnosed on overwhelming symptoms alone and the exclusion of other diseases if you see a LLMD.

Regular Member

Date Joined Feb 2006
Total Posts : 346
   Posted 1/5/2009 9:48 AM (GMT -6)   
You need to see a good LLMD to be tested. I was treated several times, once in 2003 and it was not long enough to clear up my symptoms, and again in 2004 by a doctor who was only willing to treat for 90 days - again not long enough considering how bad I was.

I played with off and on treatment for several years, nothing consistent and not overseen by a knowledgeable LLMD. By spring 2007 I felt as if I was dying or moving on to ALS. I went into treatment for 14 months and am 80% better.

Your symptoms are serious and you should call to get an appointment today. You cannot give up. Being worn down and depressed by what you are experiencing makes it tough to be pro-active for yourself.

If you need recommendations for a good LLMD contact Ticker.

Veteran Member

Date Joined Feb 2008
Total Posts : 900
   Posted 1/5/2009 1:39 PM (GMT -6)   
Please follow the advice posted and see a LLMD. I have read so many posts, articles (and even books!) about people such as yourself incorrectly diagnosed and treated. In the beginning ot the book Cure Unknown, that author tells how her little boy was incorrectly diagnosed for years, tests came back negative and when they were finally positive, the doctors did not treat him correctly. He became sicker and she was told it could not be lyme because he should be well.

Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 1/5/2009 4:46 PM (GMT -6)   
I've seen an LLMD...several tested twice...only a couple positive bands and very weak positives at that...he wanted to treat with abx but I just feel that is so dangerous...I did doxy and a strict diet w/supplements for a couple months...even went gluten change...

Regular Member

Date Joined Apr 2008
Total Posts : 266
   Posted 1/7/2009 10:04 AM (GMT -6)   
You should not be focusing on just lyme. Often we end up with co-infections that are worse than the lyme. You may not have seen much improvement on doxy because that is not the miracle drug for later stage lyme and co-inf. It'll be a nice one in a combo but not by itself. I would say read up on co-inf. and see a llmd and discuss the possibility of co-inf. You go after those and then you'll start to get your life back. As far as abx being dangerous- not treating this stuff is far more.

wishing you well

Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 1/7/2009 1:47 PM (GMT -6)   
I did get tested for co-infections and everything wag negative...

Is it really terrible to consider going to natural route? Can anyone speak of getting better without antibiotics?

Regular Member

Date Joined Apr 2008
Total Posts : 266
   Posted 1/7/2009 3:14 PM (GMT -6)   
I have at least one co-infect and tested neg. Those tests are just as bad as the lyme one. NOT fool proof. As far as natural treatment someone else will have to discuss this with you. I am one of those that believe you need abx to combat this stuff.

Veteran Member

Date Joined Jul 2007
Total Posts : 943
   Posted 1/7/2009 5:30 PM (GMT -6)   
You MUST see a LLMD who will treat symptoms and not tests. I was practically dragging my entire left side for 3 years and had extreme neurological issues. I have had lyme for 18+years and just began treatment 5 years ago. After seeing over 30 specialists--It wasn't until I started to treat babesiosis and bartonella along with lyme that I began to get better. I was forced to pay out of pocket for a LLMD because the traditional ignorant medical professionals failed me miserably. It is worth it even if you have to mortgage your home to get better. There is light and hope and healing. It is not quick but it will come. It won't come if you do nothing. Blessings

DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!

Veteran Member

Date Joined Jul 2006
Total Posts : 652
   Posted 1/7/2009 11:38 PM (GMT -6)   
I need help finding a doctor in MI...I've only seen Dr. Z....and I've seen him several times for many types of testing...I only know of one other and I believe he is in Saginaw...

Ticker? Anyone else in MI?

Thank you in advance...


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