i am finally having the igenex testing. i however, can only afford the basic lyme panel. i am wondering if anyone knows about how accurate this is?
i am worried that i am neglecting to test for the other tick borne diseases, but they are just too expensive right now.
i have been sick for about two years now, i am 25 years old, and i went from in above average health (division I ncaa college athlete) to really debilitated over the course of about a year. i had been living in west africa, and felt great the whole time i was there. i do remember, however, being bit by a tick and it was embedded for about four days. it was shortly after that i got sick with a high fever, fluish feelings. all that passed, and i returned home to america feeling perfectly healthy. i was also taking 100mg of doxy a day as an antimalarial. as soon as i stopped the doxy, two weeks after being home, i suddenly developed unusual symptoms.
two years later, no diagnosis. i had been diagnosed with autonomic nervous system dysfunction, but doctors are still trying to figure out the cause. also, my fluctuating swollen lymph glands and some joint swelling, and the constantly creaking and cracking unbendable neck, do not fit a dysautonomia profile. it sure seems like i have some kind of infection or virus, but the african ones do not fit. with all the african diseases, i would primarily expect to have a high fever - i have very low body temperature, which is not normal for me.
so anyways, that is a little history on why i am concerned i am not taking appropriate measures to include all tick borne diseases. i am not sure that ld or any of the other tbd exist in west africa - but i am also quite sure that research has not been done there. there is one paper that says tick relapsing fever is in the area where i lived in west africa, but they did not test for lyme.
i was planning to rule lyme out if the igenex basic test comes back negative. now i am not so sure that is such a great idea. should i just suck up the $600 it would cost me to see a llmd?
i have nearly every single symptom on the comprehensive lyme list. now that it seems everything else is ruled out, i just can't imagine what else could be going on.
just looking for suggestions. i have a host of appointments coming up at stanford - if the igenex test comes back negative, should i just wait on seeing a llmd until i deplete the stanford system? or should i really pursue the possibility of seeing a llmd?
oh, one other thing is that when i returned from africa, i moved home to a very tick endemic area in maryland. i knew at least four or five people in my very small neighborhood alone who had lyme. if i had gotten it in md however, it would have affected me rather quickly. not sure if that is possible.
anyways, thanks for listening!!!!!! i am really really sick of being sick, and i just can't stand to wait around any longer for doctors to do all these invasive and expensive tests just to tell me they don't know. or to diagnose me with these syndromes that i don't even fit into. requiring me to see a specialist like hours away in that syndrome who then tells me i don't have it at all. sick of it. so hopefully someone here can help me!!! thank you thank you thank you!!!