Oh wow - maybe a foreign strain of Lyme.
Sure seems like it would be good to go to a doc that has seen TBDs. A negative WB test result doesn't even mean you don't have Lyme. Tests just support the clinical findings. I believe the tests here in the US are developed around one of our common strains. Who knows how a foreign strain of Lyme would show up on the US test?
In my reading since I've been diagnosed with Lyme (CDC positive), there are 3 major Lyme strains in Europe and they each have a little different signature. This is a difficult problem!
I'm so grateful that I found my doc - she works with immune problems, hormone deficiencies, Chronic Fatigue and Fibro. In the course of working with fatigue and fibro, she has seen enough Lyme cases that she was able to put it all together. An llmd could be a valuable resource even if it isn't Lyme.