TYGACIL - A THUMBS UP!!!! Six weeks so far!!!!!!!!

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Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 1/15/2009 5:50 PM (GMT -7)   
Hi All,
 
I wanted to report how life has beeen on Tygacil. I  was put in Tygacil or otherwise known as Tygacycline. It is in the Doxycycline family but much stronger. I do it through IV twice a day.
 
This week is my 6th week and I cannot remember the last time I was this happy, the pain load is lightening up and I had a heavy load of pain!!!!! It pretty much ruled my life! I would say now depending on the day it can be as much as half the pain!
 
I feel clearer in my head, am able to last longer throughout the day, however still hurt when I get home, but not near as bad as before. I am not really expreiencing any hadaeaches, maybe a few sinus like headaches but no the entire right side headaches and i have very little swelling on the right side where I was expreiencing a lot of palsy and severe swelling that spread down into my throat which would cause food to get stuck and it was a scary feeling!
 
A lot of these things I really cant answer, like when getting out of bed first thing in the morning I don't dread the first few steps knowing they were going to hurt like hel*!!! I was able to stop taking my sleeping meds, only take my valium when needed and before took exactly as prescribed, not taking break through pain meds as often as they are prescribed and quit taking my celexa totally!!!
 
I feel more like me. Still having some depth perception issues an some dizziness, and stomach aches, but besides that I am doing the best I have been doing in the past two years! I know TYGACIL is not a big pick b/c the nausea can cause. I take mine with Zofran at least 1 hour to 2 hours proior to and have only experienced nausea maybe a couple of times due to me rushing the iv drip to close to the time I took the Zofran!!!! You must also eat first
 
I think Tygacil should be used more often in other's treatments! If you know you have a weak stomach and everything makes you sick than no it's not for you but for those of you who are tougher and have the stomach of steel like I do i truly feel you will do fine on it!
 
Just thought I woudl share my story! It is always to hear a nice improvement story!!!
 
Take Care,
Onnmyway
Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!


Dan's Mother
Regular Member


Date Joined Feb 2007
Total Posts : 189
   Posted 1/16/2009 8:35 AM (GMT -7)   
Thanks so much for posting this. I had seen so many people post about the problems that they have had tolerating tygacil, so I'm glad to see that there are people with cast iron stomachs ( like my son) who can tolerate this abx. It is definitely something to keep in the back of my mind --- Plan B.

Take Care,
Karen

bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 1/16/2009 9:37 AM (GMT -7)   
Interesting information because I had not heard of this antibiotic. Is your LLMD using it on many patients? Why did he decide to use it with you.

I have been on IV's before - very aggressive - had many of your symptoms, including choking, difficulty swallowing, muscle twitching, bells palsy......

Thank you for responding.
bcaring

peter j
Regular Member


Date Joined Mar 2007
Total Posts : 126
   Posted 1/16/2009 11:44 AM (GMT -7)   
I've used it for about 2 months now, and I have also improved. A bit clearer head, and a bit easier to get sleep. I only got some nausea the first weeks, but now I am not experiecing any side effects which I would tie to the tigecycline treatement.

Staris
Regular Member


Date Joined Dec 2008
Total Posts : 20
   Posted 1/16/2009 2:53 PM (GMT -7)   

I've hear its quite expensive.  Onmyway and Peter J - have your insurance companies picked it up?  Did you Dr. just diagnosis Lyme straight up and then write a script for it?  If they have not picked it up, do you mind me asking how much it is was for each of you?  Of course you can't put a price on your health but unfortuinately everyone seems to respond differently to different combos, etc.

thanks!



Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 1/17/2009 6:33 AM (GMT -7)   

Hey all,

 

My insurance pays for it so I am not sure how much it is! My Dr. put me on it b/c I asked him to and he is and ID that believes in lyme and long term treatment. I also see and LLMD and he recommendedit as well as long as my tummy can handle it!

As Dan's mother said a stomach of steel! Well that is what I have. I take pain meds on an empty stomach first thing am and no problems. Those of you whom are stomach sensative know and I would not try this medication! I am sorry for that. I mean you could always try and use Zofran or Raglan and see what happens!

I will keep reporting as I go on! Peter was right to. I used to take Ambien to sleep and I don't need it anymore b/c this makes sleeping much easier! The only thing my husband says is I talk in my sleep all the time!!! I mean all the time! Hope I don't say anything ugly!!! :)

I will talk with you all soon and even see some of you this Monday at the GA Lyme Forum. GO GA we are rocking away here with Raising Awareness!!!!!!

Hugs to all,

Onmyway

 


Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!

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