Any of you savy Lymies know how to start a non profit support group for treatment??????

I want to raise money to help those in need.

Anyone have some tips on how I go about this?

What would be my first steps?

Do I set up a corp. Guess I need a lawyer...hmmm....any one on here do this sort of thing.

I like the idea of being robin hood...I look great in red....lol 

I would have to get a whole apartment complex here in AZ for starters...lol...

And get a bulk rate at my clinic lol......

all ideas are welcome.....and what about a name?????

Marie

I think that would be a great idea Marie!! Have you seen this before? I think this is also a great cause.

http://www.pennies4patients.org/

Hey,
Oh sorry that you are not feeling well. I think that you had asked me for coffee...no? Gosh I have been a little busy and now that they have upped my treatment to 6 hours a day. I am sort of a wash afterwards.
I will be at the clinic so much in the next 3 weeks or so....so ask for me...lol
Tell them that I wanted to meet you! You can't miss me. I am the only 6 foot blond girl there. The one with the pink lap top in her lap....bored...lol
I will look at your site. I think that I should not put lyme in the name of my org. But make it "seem" to be something else. More broadened really. And no one on here only has lyme. Right?
Well come on down to the clinic darling...and lets do some iv together..lol
Since I know Lymies do not do lunch....or dinner...gosh I couldn't...:>)
I will tap on you directly and give you my phone number and contact info...other than that..come and find me.
I am there at 8 am to about 2 pm or so. Let me know when you are coming...and I will wash my hair...ha
Best,
Marie

Hi,

I am a member of a non profit site for Lyme called www.dailystrength.org

There are lots of lymies on there, who you can share symptoms and ideas

with ( No, I don't work for dailystrength) it a very good site though.

One lady on there had given both her Daughters Lyme, and is in your

Position.

Hope this helps

Dave

Marie,

Contact the facilitators of the foundation established for LymeAid4Kids Fund through the Lyme Disease Association.  If you have a chance to call me, I will give you the attorney's email address who was involved in this process.  Expert on Lyme, battled Lyme, lawyer.  Great combo! for these types of inquiries.  May be able to bridge communications between you and Amy Tan prior to your meeting w/the attorney. 

Also, PenniesforPatients was established with the help of PJ Langhoff.  If you need her contact info, let me know.  She could also help point you in the right direction.

Blessings,

Sojourner

Sojourner.
Of course you have all the answers! I should have known! I will give you a call and pick your brain...lol
Or you can e-mail me directly and give me some first steps that I should take..the contracts that you mentioned would be very helpful. Or if one of the other org. want me to come on board to raise money for them I would do that too.
But I really have strong ideas about how I want to go about this already. And I already know where and how my money is going to be spent. And I already have many people that I want to help...lol. met alot of them on here.
Like my poor gal, Diane , living in some hotel, broke,and alone trying to safe her life for the last 5 years. Who cannot afford to come out to Az.
I have some leg work to do. Like finding good prices on apartments in PHX a short drive to Scottsdale. And I mean..2 to 3 mos rent is not a big deal. And maybe some women would be better off put with a roommate...if they are alone.
And then of course treatment for them, where I am now. Because I know it works.
When I went to a Dr. P in FLL . She told me that my treatment would not be covered by insurance and that my abx were going to run me bet. 3 and 5,000 a month for a year and a half. I could not afford that!
And it is too long and just did not feel right to me. And who has the time to be sick for that long....not me.
So my plan is somewhat simple. I know where my money is going. oh and plane tickets to get people here too.
I do not want to move to AZ....ugghhhhh.
But if you have any ideas I would greatly app. them.
You have my e-mail address.
xox
marie

hey deb,
You need to call and make an app. at the clinic. You can't just walk in and get seen. They are very busy. I told them that you were going to some by and they asked for your name. And said that you they did not know about an app. with a Debbie, then they asked me your last name..and I don't even know it..lol
So...If you want t tour and for someone like a Dr. to sit down with you and tell you what they can do for you. You will have to make a app. And I had to make mine 8 working days in advance with the Dr.
M