(this is a continuation from another post) I have had Lyme for over 6 years and recently re diagnosed from the original "Depression/Fibromyalgia/CFS" I am currently on Amox 500 mg 3 times a day and Doxy 100mg twice a day. My insurance will not cover a LLMD.
I just looked back in the records and my dog died of "Ehrlichiosis". It's related to tics and lyme, he died just a couple months before I got sick. I have not been tested for co infections, in fact my doctor does not even know what co infections to test for
Is there a list of co infections that I can bring her to test for? She is not a LLMD but she is the best MD I could find willing to treat me that takes my title 19 ins. She told me I need to see a LLMD and go on IV but my state insurance "title 19" will not cover the doctor or the IV as far as we know. Because of this I asked her if she would try long term orals because that was the only option I have left. She is doing her best, she asked ME what antibiotics I wanted to try and I told her amox and doxy so she wrote it out. She said she is willing to try a different combo if it does not work. It's been about
3 weeks and so far I have not felt any better. If anything I am starting to feel a tad worse. I am pretty far gone from where I use to be both psychically and mentally. As far as we can tell I have the later stage neurological lyme. Other then the moderate to sevear pain I also have problems ballencing and I am very clumsy. I have trouble taking my clothes off when changing because I lack strength and coordination. I am very sensitive to cold weather or any type of breeze. I often take methadone and it helps me A LOT but it does not do much for the brain fog and clumsyness. I hate taking it just because I don't like taking any pills unless I absolutely have to, never have. I am on disability and had to move in with my grandparents. I am pretty desperate for new Lyme treatments and I have tried a few alternative things that did not do much more then drain all my money. I had a limited success with Rife but could no longer get out to the dr that is 2 hours away from me due to transportation issues and the fact that the long trips were taking a toll on my health. Any suggestions on treatment options would be well appreciated. I live in CT and I am 27 years old.