The key to knowing if your are in "remission" from Lyme is to know the results of certain tests, known as "biomarkers"
1. How high is the CD57? My doctor will measure this at 6 month intervals to get an idea of the trend over time. It is not accurate day to day as the level varies.
2. What is your C4a level? If still elevated treatment needs to continue.
3. What is the TGF B1 (Transforming Growth Factor Beta 1) level? If still highly elevated, stay on meds. My doctor said that this will drop when symptoms abate or soon thereafter.
#2 and #3 are tests for inflammation. They are not specific for Lyme, but if you have Lyme, they will generally remain high until remission is achieved.
As MV said above, each doctor seems to have their own protocol on the order and type of meds.
14 years undiagnosed Lyme. I had a bulls-eye rash following a camping trip to NC in 1994. Swollen knees and replapsing and remitting vertigo followed for the next 14 years. All Lyme tests negative. Could possibly be B. lonestari due to being bit in the South.
Just began treatment with low dose Minocycline and Benicar.