You're not alone. My situation is similar - I've gotten worse over several years. Fatigue, exercise intolerance, cognitive stuff. It's overwhelming if I try to figure out where I'll be a year from now - and how I'll get there..
Insurance plans are all so different. My llmd is not covered by my insurance, and neither was the IgeneX testing. Maybe the best money I've ever spent tho. The way things were going - well, I couldn't afford not to pursue this. Everything thing else in the way of tests and meds has been covered. What my llmd told me is that usually there's not a problem with insurance covering oral abx. The question will probably be how long they will cover IV abx if they're needed.
I actually thought I had CFS that would never be diagnosed. At least we finally figured it out and can do some things to treat it. As long as I've probably had Lyme, I'll be happy if we can keep it from getting worse and maybe make some improvements.
When the abx kill the Lyme there are toxins released. These aggravate my worst symptoms for a while. I'm beginning to realize that this will be a marathon - not a few months sprint. But really, what are the choices? I worked and kept going as long as I could - and then crashed. It does help to know there's a cause behind all of this.
Hope all goes well with your visit. My llmd explains everything so well and is so supportive.
Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..." (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)