Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Need help-freaking out

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
beths
Veteran Member
Joined : Aug 2006
Posts : 690
Posted 1/28/2009 10:59 AM (GMT -8)
Well, I was having a relapse, so I'm back on abx. However, my LLMD added cumanda. I took 5 drops Mon night, Tues and this morning. All of a sudden, just now, I'm short of breath. dizzy and shakey.

When does a herbal herx hit? I know with abx it's the 3rd or 4th day-same for Cumanda.

I am freaking out-haven't felt this bad in a long time.

profile picture
seeingstars
Regular Member
Joined : Apr 2008
Posts : 266
Posted 1/28/2009 11:07 AM (GMT -8)
what abx are you back on? Did you start your abx and cumanda same time? When did you start back on abx?
profile picture
beths
Veteran Member
Joined : Aug 2006
Posts : 690
Posted 1/28/2009 11:31 AM (GMT -8)

I started bactrim/zith about 2 weeks ago, I alternate it with malarone zith-this combo helped me turn the corner over the summer, and into what I thought was remission.

Just started the cumanda Monday night

profile picture
seeingstars
Regular Member
Joined : Apr 2008
Posts : 266
Posted 1/28/2009 12:01 PM (GMT -8)
I can't tell you anything about cumanda-never tried it. I hope others will offer you thoughts on that.

I can say that I have read babs runs a course of 5 or so days. Maybe your other meds are making you herx.

I wish you well
profile picture
rvnut
Regular Member
Joined : Dec 2008
Posts : 67
Posted 1/28/2009 3:15 PM (GMT -8)
Cumanda looks like it's pretty powerful. You should check with your doc right away.

I've not used cumanda, so can't spesk to it. But I get a herx start 4 to 6 hours after I drink my herbal tea.
So you could well be herxing.

Be sure you check with your doc. If you're still herxing bad and can't get your doc, you might want to back off the cumanda a bit until you catch up with him.
profile picture
beths
Veteran Member
Joined : Aug 2006
Posts : 690
Posted 1/28/2009 4:01 PM (GMT -8)
Actually, he told me to start with 1 or 2 drops-but I took it in the past and didn't have a problem..although I was getting toward symptom free.

profile picture
rvnut
Regular Member
Joined : Dec 2008
Posts : 67
Posted 1/28/2009 4:22 PM (GMT -8)
Sounds like your body needs to get adjusted to it. Is cumanda prescription?
profile picture
beths
Veteran Member
Joined : Aug 2006
Posts : 690
Posted 1/28/2009 4:45 PM (GMT -8)
No, it's part of the Cowden herbs

profile picture
Life'sRhythm
Regular Member
Joined : Jan 2009
Posts : 31
Posted 1/28/2009 6:01 PM (GMT -8)
Yikes, maybe I am overdoing the drops dosage. I started taking 2 drops twice a day and now I am doing 20 drops twice. I am really not feeling good. This is the most nauseous I have felt since before and my limbs are so weak and heavy I can barely function. I can't tell what is what anymore, (herx, lyme, etc. ) and I don't talk to my doctor until next week. I needed to give Samento a break after 12 1/2 days. argh.

Still have my fever which HAS NOT LET UP, today it is a full 30 days!! is that crazy or WHAT! I have felt a glimpse of kind of normal (in a sitting position only) 3 days of this whole first 30 days. Is this what it's going to continue like?

rvnut, will you share the kind of tea you drink?

L J
profile picture
rvnut
Regular Member
Joined : Dec 2008
Posts : 67
Posted 1/28/2009 6:01 PM (GMT -8)
Might have to try it - a smidge at a time.
profile picture
Life'sRhythm
Regular Member
Joined : Jan 2009
Posts : 31
Posted 1/28/2009 6:03 PM (GMT -8)
sorry beth, I know this is your thread about feeling bad, but I guess maybe I had a moment of freaking out, too.

L J
profile picture
beths
Veteran Member
Joined : Aug 2006
Posts : 690
Posted 2/1/2009 6:59 AM (GMT -8)
What is your fever from?  Can you get a fever from a herx?

profile picture
ticker
Veteran Member
Joined : Feb 2003
Posts : 9208
Posted 2/1/2009 8:24 AM (GMT -8)
beths, did you start off with five drops?  That sounds like a lot to start with to me.  Many doctors have you start off with one drop and gradually build up.  
profile picture
beths
Veteran Member
Joined : Aug 2006
Posts : 690
Posted 2/1/2009 10:02 AM (GMT -8)

Thanks-I think I will start with just 2 drops and go on from there. I was so disappointed-I had finally become symptom free for 2 glorious months and off abx, felt amazing-and then Bam. However, I ate a lot of junk over the holidays. My LLMD says sugar lowers the immune system by 50%-not the time I should have been eating fudge!

I just had the stomach bug over the weekend..I'm tired of being sick!

✚ New Topic ✚ Reply


More On Lyme Disease

Painsomnia:  Getting A Good Night Sleep With Chronic Pain

Painsomnia: Getting A Good Night Sleep With Chronic Pain

Why It's Okay To Grieve Your Chronic Illness Diagnosis

Why It's Okay To Grieve Your Chronic Illness Diagnosis


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.