Seeing Stars in upper peripheral during exercise or exertion

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hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 1/28/2009 7:06 PM (GMT -7)   
Please advise. I hate going to ANY doctor.

My eye doctor dismissed my floaters totally. "There's nothing you can do."

"Live with it."

The flashing blinking type twinkling stars I see when I look up at the sky when I've exerted myself has been happening regularly for a few months.

At first I thought it was the 400 mgs of daily doxy, but now I have no idea.

Probably not serious, but I'm kind of curious, does anyone else have this?

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 1/28/2009 7:28 PM (GMT -7)   
I just had to reply since your problem is my HW name. Remind us how long you've been on doxy. I do think it will pass. And I am right there with you about the doctors. Would they just "live with it"? I doubt it.

hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 1/29/2009 6:17 PM (GMT -7)   
Four or Five months now -- seeing stars -- doxy.

I think I noticed it during my first Herx on doxy. It never went away.

A few days last week, when I was feeling better, it all but stopped.

Now that Lyme is back, it seems to vindictive.

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 1/30/2009 9:23 AM (GMT -7)   
Are you just on Doxy?

I am into this treatment long enough that I am one that believes combo abx therapy is best. Do you think you may be missing a co-infection?

hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 1/30/2009 2:59 PM (GMT -7)   
400 mgs doxy/ 1000 mgs biaxin

all the usual supplements.


i'm supposed to get on plaquenil in a few weeks to boost biaxin

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 1/30/2009 3:32 PM (GMT -7)   
Well then I would say you are almost covering everything. It will be interesting when you add plaq.

I was thinking too that the stars may have something to do with blood pressure too.

Don't know. Just throwing that out there.

hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 1/30/2009 5:44 PM (GMT -7)   
I have normal blood pressure.

I not only see them when I exercise now but when I bend down and get back up. I not only see them in my peripheral vision, but now it's right in front of me.

I hate like hell to go to the doctor. So the heck with it. I can live w/ it.

feelinghelpless
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/7/2009 11:44 AM (GMT -7)   
Hi,
 
 I'm new to this site. My 17 yo stepdaughter had a stomach flu over Christmas. Since then she has developed palinopsia. She sees floaters, tails, images and shimmers. She had a non contrasted MRI which showed some subcortical focus in her white matter. ? Migrane, Lyme, vascular inflammation or MS. That was 1 1/2 mos ago. Her visual symptoms are daily. Hasn't been to school in a month. She is scheduled to have a MRI with contrast, MRA and EEG. She is not taking any medication. Do or did any of you experience these types of symptoms with your Lyme?

hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 2/7/2009 12:45 PM (GMT -7)   
Welcome to the forum helpless! Believe me we know how you feel.

Sorry to hear of your daughter's recent health woes.

Even though, the tests may not be accurate, she should be tested to sort of rule things out or support a hypothesis...

If it's early MS, there are some stem cell research advances that incredibly promising. I don't know if it's ready for the world, but I do know an initial trial showed that all patients improved when given this treatment.

feelinghelpless
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/7/2009 12:54 PM (GMT -7)   
She's seeing a neuro-opth. Her doctor doesn't seem to think it's MS when we asked. (Non contrasted MRI was normal) She said something about ? ocular migraines, but that usually occurs in 1 eye not both. Another thought was visual epilepsy, but her s/s are daily. She was never tested for Lyme disease. Maybe she should be?

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/7/2009 1:50 PM (GMT -7)   
Dear helpless,

Do you live in an endemic region? NY, CT, MA, etc. (I don't and I tested positive anyway.)

Does she engage in activities that would put her at risk? (I hiked off the beaten path in June.)

Do you live on a farm or in a rural area? (I don't but you know what, there are deer in my yard as well as foxes and other critters.)

feelinghelpless
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/7/2009 3:27 PM (GMT -7)   
 We live in Northeastern PA-near the Poconos. There have been documented Lyme cases in the Poconos. We don't live in the country, but she does a cat. (Indoor cat) If they can't find a cause for her symptoms, did anyone ever try accupuncture?  

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/7/2009 6:03 PM (GMT -7)   
Not yet. But that's next.

It's proven to be an excellent remedy for pain.

I'm going to have it done for my trigger fingers.

feelinghelpless
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/7/2009 9:55 PM (GMT -7)   
I read there's no cure for palinopsia and if we can't find the cause, we'll be going that route too.

WhenLifeGivesULymes
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/4/2009 2:57 PM (GMT -7)   
This shooting stars description is the same thing I've been experiencing in both eyes periodically for the last few months - in addition to the other fun neurological symptoms of frequent tingling, full-body muscle twitching, increased eye floaters, delayed menstruation every month since symptoms onset, dysautonomia , etc. - however, this was occuring BEFORE I started taking Doxy [just started low-dose yesterday].

So, maybe this is a lyme and NOT doxy-specific symptom? Went to both a normal opthalmologist & neuro/opth in NYC who didn't find anything unusual apparently though.

2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 6/4/2009 3:24 PM (GMT -7)   
Both my husband and I have Lyme and are both experiencing this symptom. I take 400mg Doxy, 1000mg Flagyl, and 1000mg Biaxin. My husband takes 400mg of Doxy. Both our 'seeing stars' happened shortly after starting Doxy. We both experience it every now and again. It's scary when it happens!
I seem to have the same symptoms as you. They have definely gotten better with tx. I started tx in Feb with just Doxy, started Flagyl and Biaxin in March. I'm still experiencing these symptoms but to a lesser degree. Some days I even feel like myself again! Getting there slowly.
Hang in there, it does get better!

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/4/2009 3:26 PM (GMT -7)   
hpoing. i dont have the s/s thing but i tested ata eye specailest 20/20 and everything within arms reach is blurry. makes no since at all.i also have a lesion in my left eye.and at times i do get the star birght efict when watching TV if they show a bright screen. i am very light sisative.

feelinghelpless, i had both w an w/o contrast MRI. i also showed 10 to 15 lesions got almost the same report as you stated. thats why i had a lyme test done to rule it or out as my dog tested postive for lyme last yr. i wouldnt rule it out till you test for it.

wishing everyone the best
   RD
                                                                                                                 
 
still looking for answers
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 6/5/2009 3:21 PM (GMT -7)   
my came on with the massive doxy dose and i'm off doxy now and it's still there along with plenty of floaters. I'm off it all now and my brain is by far slower than before. Like it's been fried. So, I wait. And hope things improve.

Meds can be toxic too you know.
Bit June 08.


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 6/5/2009 5:13 PM (GMT -7)   
The star thing does go away with treatment. I also got halos, severe light sensitivity and more. Last years an Opthamolagist said it was swollen optic nerves----possibly from lyme! At least I ruled out anything else that could be wrong with my eyes. A few years before I was first diagnosed in 03 I noticed blurry vision, went for an eye test and it was found I had narrow angle glaucoma- I was too young to have glaucoma they said. But I did and I had to have laser holes put in both eyes to prevent damage. That was the beginning of all my vision loss ...before i needed new glasses in one year! I was only 44 at the time. The eyes get affected by co-infections too and I have them all. Keep treating aggressively so you can kill these nasty bacteria and parasites and preserve your eyesight and you will be OK and maybe you will only be "see stars" over happiness. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

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