All of my Lyme tests have come back negative (Quest & Medical Diagnostics Laboratories) so of course, it has been difficult to get anything more than some oral Doxycycline. 100% of my issues can be found on the Lyme symtom list and about 50% of the symptoms on the list are ones I experience. Some things are commonly found with Lyme, like insomnia, burning prickly pain, joint pain, cognitive problems, etc. However, they are vague enough that they could represent some other problem. It's the ringing in the ears and the slackened muscles in my jaw that make me believe it's Lyme (unless someone has another thought?). Plus, I had what I think was the bulls-eye rash twelve years ago when living in Florida although it was never documented by a doctor.
I realize that my best bet is an LLMD but because I could hardly be considered well off, I have been trying to find a doctor that accepts my insurance who will get to the bottom of all of this. Also, any of the LLMDs I have looked into have said they would be unable to get me into see them for at least 2-3 months. That would be torture!
I do have an appointment with one of the Infectious Disease specialists at Johns-Hopkins and wondered what experiences people have had there. Please fill me in!