Yes, it is certainly very hard, maintaining some normal semblence of a social and love life. I like it, a lyme dating site...
LOL, 'my lyme bed time'. Know what you mean, I feel like I'm 80yrs sometimes.
This struggle with 'But you look so good, you can't possibly be so ill' is something I think about often. A few times I have told (traditional docs) that I wish I had a goiter or tumor to show. Of course they thought I was nuts. I do believe that that was when a doc told me that my positive spinal tap meant nothing and handed me a bottle of Cymbalta.