Advice or Info on Lyme Disease after treatment

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Prilla
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/2/2009 8:42 AM (GMT -7)   

It all started about 6 months ago I thought I got a bee sting and I am allergic to them so I went to the Dr and told her what I thought it was even thought I couldn't remember getting stung in the first place. I was given steroids and then a few days later the rash appeared on my leg (it was on my arm in the first place). Then that went down and it appeared again on my arm and it came up into the bulls eye shape nearly covering all the top of my arm. I was clueless to Lyme Disease never heard of it before. Went back to the Dr and she had never seen it before but defo said it wasn't a bee sting. She called her colleague who had specialised in skin and said it might be Lyme Disease but they gave me antibiotics just in case. I got the blood test results back 3 weeks later and it confirmed I had acute Lyme disease. I went back to the Dr complaining of severe headaches, tiredness, etc. etc. They sent me to hospital for tests and thankfully they came back clear. I was on the antibiotics for over 3 months.

 Lately I have been feeling really tired again, like I can never get enough sleep. And my hair is so so sensitive, it sounds weird but I can't wear it pulled back it hurts, it feels like somebody is pulling it out. And my eyes are super sensitive to light. I also have a darting pain in my head just in the one spot and it could last days and no tablets will take the pain away.

 I'm just wondering is this normal and how long will I have these symptoms?

 The Dr has never treated this before and just sends me into hospital where I want to avoid at all costs. I don't know anyone who had this disease before its pretty rare in Ireland.

Any advice or info would be much appreciated.


Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 2/2/2009 8:58 AM (GMT -7)   

Hi Prilla,

I'm sorry you are not feeling well.  It sounds like you make have co-infections along with the lyme that weren't addressed or taken care of with your antibiotics.  Your symptoms sound a lot like my daughter's, and she had ehrlichiosis, and has babesiosis and bartonella.  She started treating on 10/31 for babesia and lyme, and just started with meds for the bartonella.  It takes a long time, and in her case she has not felt all that great because the bartonella was not addressed.  She still has the severe headaches, light sensitivity, joint pain, and fatigue.

Lisa


Prilla
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/2/2009 9:09 AM (GMT -7)   
Thanks Lisa and Elijah. I'm back to the Dr on Wed so hopefully they can test for co-infections.
I have been going to a Kinesiology since I have been diagnosed, and I have found that excellent. All the antibiotics did was kill the good along with the bad so I got stuff to build up my immune system. I never got the results back from my western blot tests, I found the Kinesiologist better at treating me than the Dr so I get them Wed. I suppose it takes time and I have a head cold at the moment so maybe that makes the symptons worse.

Thanks again and Lisa hope your daughter feels better soon.
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