Please Wish Me Luck Today

I have my first appointment today with a lyme specialist on the upper west side in Manhattan.  I will not post his name but have heard great things about him, especially related to late stage neuro lyme.  Will let everyone know what he says when I'm up to posting again.   I'm so thankful that I found this group.  I'm not always up to posting but knowing others are here and unfortunately going through the same thing, helps tremendously.  Please wish me luck!

Hi Scorpio 1960

I wish you all the best too!!! dorit

I just want to say that the doctor I went to yesterday is wonderful. I managed to show up at his office one week early and he and his staff stayed late to accommodate me. He spent well over an hour with me and needless to say I know I'm in good hands. I'm very overwhelmed and now have to figure out a way to pay for the treatments but that's an entirely different story/post. lol I'm just so glad that I chose him out of the list of doctors I was given. As for showing up one week early, I guess it's obvious that I suffer from major brain fog. LOL I wrote down 2/4 several times but they assured me my appointment was not until next Wednesday. I could go and on about all the idiotic things I do and this is just one example of many. No matter how hard I try or how many times I double check things, sometimes (actually, most of the time), my brain malfunctions. Sometimes it's funny, sometimes it's very scary and other times it's very embarrassing. Oh well!

When I start the meds I'll post what I'm taking and how I'm doing.

Gracie's Mom - I told him you said hi! I sure hope he can save me.

It's great that you have a direction now for treatment.  Don't beat yourself up about "The Fog".  It's common for CFS/Fibro/Lyme people.

I went to a vitamin store a couple of days after my fisrt Herx.  I'd picked up several bottles and was carrying them around.  Then I was looking for DHEA (adreanl support).  I knew I'd seen a bottle.  I got the clerk to help look for it and my wife was looking too.  The clerk checked inventory - yep ... should be one left.  Finally i noticed that it was one of the bottles I'd been carrying around.

To make things work - when I checked out, the clerk gave me a brochure on their new super memory improving supplement  

You're not alone.

Thank you all for your good wishes. I appreciate it so much and find it comforting to hear that others have heard good things about this doc. Now all I have to do is hit lotto and if I do I promise to help out those who need their meds. Boy have my priorities in life drastically changed.

If I had the funds I would consider going to Envita. The thought of getting it over with in six weeks instead of six months and having them deal with port, IV and meds instead of doing it myself is very enticing.

I'm still really freaked out about the PICC line but then I think about all the poor children who have bravely dealt with it and their wonderful Mom's who had to stand by and watch (and of course help). It makes me realize I need to buck up and get over it already.

Really, everyone here has been through so much and still manages to remain positive and so supportive of others. What a special group of people!

Thanks Razzle.