UPDATE- Heart Valve and Side Pain Issues

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minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/5/2009 3:17 PM (GMT -7)   
I can finally update you all on 2 things some have wondered and complained about. The first is Heart Affected by Lyme. In July I was told I needed 2 valve replacements. The valves appeared to be damaged from bacteria. I became extremely short of breath with palpitations. This is after treating babesia for 2 years with no shortness of breath. I fought with the insurance company to allow me to get a nuclear stress test for 6 months. They refused to allow it because my lipid panel was good.. I had a treadmill test in September which I was unable to complete due to palps and shortness of breath-they made me stop. Continued to appeal to insurance to no avail. HERE"S THE DIFFERENCE---During the past 4 months I have began treatment for bartonella which I tested negative for but suspected I have it. I now have some palpitations and very little shortness of breath. I had a ultrasound stress test last week which I was able to complete and met with cadiologist today for results. The result is that I do NOT have to have heart surgery for valves thought they have been damaged they no longer seem to be affecting me. The stress test came out fine. I hope this taught the cardiologist a little something about Lyme. I connected the dots for him and attempted to explain more about what the antibiotic treatment had done for me he seemed perplexed and puzzled and wants to recheck in 6 months. I am releaved to say the least.

Now about the Pain and tugging under rib cage. I have mine on the left side under my breast. It feels deep inside and not from a muscle. I suspected maybe liver/spleen enlargement. I had an abdominal ultrasound which showed all is fine there as well. So any of you who have this pain just might find out that like most else with lyme and co-infections all tests will show there is nothing wrong that can be detected!!!!!However we cannot ignore symptoms ---just in case. So there is my update. I am much better since adding bartonella treatment to the lyme /babesia mix.

Hope this helps. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


rvnut
Regular Member


Date Joined Dec 2008
Total Posts : 67
   Posted 2/5/2009 3:32 PM (GMT -7)   
Great news about not needing surgery! yeah Lyme really does some wild things.

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/5/2009 3:58 PM (GMT -7)   
Minerals -

its wonderful that you do not need the heart surgery!! Great, great!! dorit

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 2/5/2009 5:07 PM (GMT -7)   
Tho I don't know you:

That is the BEST news I've heard all day. Continue healing. And show those docs that continued treatment is a life changer for us.

Yippee for you!!!!!!!!!!!!!!!!!!

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 2/8/2009 2:06 AM (GMT -7)   
Congratulations minerals!!! This is great news! Thank you so much for keeping us all posted. Best wishes for continued success and healing. bablymers family

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 5:20 PM (GMT -7)   
Good news minerals!
I too was told the same run around with the heart and prolapse. And there is nothing worse than those heart racing moments and getting faint and all of the ekg's.
I too did not know that I had bart. and since being treated for it all of the heart stuff went away.
I had met a young Dr. one day who was going to be a cardiologist when she grew up..lol
And I told her, don't skip your classes on infectouse disease's this year. She had no interest in Lyme and actually told me that "they" did not have lyme in Florida.
I didn't mean to spank her there in front of everyone at the spa...lol. But think she got my point in the end. Or maybe is was just because her color was done..lol
ahhh a mew breed of Dr.s all as dumb as the first. Guess I should go to medical school myself and party!
:>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 5:23 PM (GMT -7)   
I tested positive for bart at the fry labs in az. but I also hear that he tells "everyone" that they are positive of bart.

I still think that maybe we all have all of these things floating around in us at all times.
How can we live in a bubble and not get bitten by a mosquitos or a flee from our dog?
I have three dogs I love to garden. And I get bitten by at least 6 mosquitos a day. Every day.

So, what is needed is a great immune system. No? Any ideas?
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/10/2009 7:39 PM (GMT -7)   
I've been through a few cardiologists and they all tell me there is no way a tick disease could affect my aortic valve. They have no other explanation but won't even listen to mine. Since there are no tick diseases here, that can't be it. I keep telling them I got Lyme in Connecticut so I could have picked up something else. It's frustrating. Seeing an LLMD is impossible at this time.

What treatment are you getting for your bart? I'm working on my PCP, he finds me interesting and may be willing to let me try something.

GLbaby
Regular Member


Date Joined Aug 2006
Total Posts : 188
   Posted 2/12/2009 11:22 AM (GMT -7)   

Minerals,

I have had this same problem underneath my ribcage on the left side.  Many Lymes have it! I would love to know what is causing mine Im too scared to find out! I need to get it checked, but Im pretty sure its from Lyme because I have seen many people post on this website that they have the same thing.  Could we put up a poll asking how many have this same symptom?

 Its a pushing (or pulling) underneath the bottom of the left ribcage.  Drive me nuts and scares the crap out of me.  Mine is starting to rotate around my back too.  I keep thinking I have Pancreatic cancer or something! Im only 33...I need to live ot see my kids grow up! I hate Lyme!  I do also have Bart too.  I kind of suspect that the ribcage pain is Bart. 

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/12/2009 6:24 PM (GMT -7)   
I have that left side pain and everything looks normal in tests. When I had abdominal surgery a few years ago, I had the surgeon poke around in there. She looked at everything she could, took pictures, and said everything looked normal.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/13/2009 3:18 PM (GMT -7)   
Thanks for all of your good wishes and responses. To answer the question of what I am now on:The bart protacol I have had since september is minocycline and rifampin. I also take malerone even though one is not supposed to take it with rifampin, my llmd tells me to anyway. I took mepron, and biaxin for almost 2 years before this along with zithromax. I am slowly improving as the days pass. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/19/2009 6:25 PM (GMT -7)   
More on pulling under rib issues
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/20/2009 12:03 PM (GMT -7)   
They said at the clinic that he found bart in just about everyone. If that means that most carry it...then maybe so.
Gosh if we can get it from a moscito then who has never been bitten.

I had been diagonsed with valve prolapse back in 99 I think. But a lot of women get it. They say it is like a door that should be like a kitchn door that should swing both ways, but with ours it only goes one way.
Taking an inhaler would set my off. So I stopped that. And stress gets it going too.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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