How many years does this take?

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hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/6/2009 4:00 PM (GMT -7)   
Just wondering.

Five months of treatment and I'm IMPATIENTLY awaiting for PAIN to abate.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/7/2009 7:59 AM (GMT -7)   
Dear Violets --

Every once in a while a post gives me hope -- and hope -- sometimes -- can be a little scary.

You've inspired me to push on. I do feel "damaged" from antibiotics, since I acquired a few new symptoms after I got on them and they have yet to abate -- that's no herx.

Thanks and CONGRATS on the road race. You have truly beat this thing.

All the best,

Hope for a cure...I'll keep looking...Until I find mine.

susan1122
Regular Member


Date Joined Jan 2009
Total Posts : 42
   Posted 2/7/2009 11:09 AM (GMT -7)   
Yeah patience is the key. : ) I would agree that faster treatment is not necessarily better. I started aggressive treatment in 2001 and didn't really feel better. I felt worse for a long time.

You'll feel better! How long have you had Lyme?

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/7/2009 12:53 PM (GMT -7)   
Thanks susan,

Have had this Since June 08. Declined over summer with floaters and myalgias, fatigue, and out of body type emotional experiences...

But it was still pretty mild in light of other stories I've heard tale of. Now I'm being treated what I believe is AGRESSIVE -- 400 mgs of doxy and 1000 mgs biaxin.

I thought it'd wipe it out but I find I'm more depressed and pretty fatigued.

Should I just stop for a while?

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/7/2009 6:03 PM (GMT -7)   
I took antibiotics on and off for about 4 years. I had neuro Lyme with severe cognitive problems and I kept losing the use of my left hand and left leg. I noticed slight improvement in some symptoms after a few weeks of oral antibiotics. This started about 18 years ago. I had 3 weeks of IV Rocephin somewhere along the way.

My docs would have me on an antibiotic until most of the symptoms went away, then I'd stop and see what happened. Usually everything would come back in less than a month. Then we'd start all over again, sometime with the same anitbiotic, sometimes we'd try something new. Eventually, I stopped improving and I didn't relapse when I stopped antibiotics. It was a very sloooow process.

At that point I was told I had (insert your favorite post Lyme diagnosis here) and it was permanent. I have never had a return of my worst symptoms but I never got back to normal either.

The pain greatly decreased during treatment but it took a long time. I still have "fibromyalgia" pain but it's tolerable.
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