Would you please email me the latest list they sent you. I would like to bounce it against my master list to make sure I am up to date. I'm pretty sure, so; but, would like to know if there is a newly trained ILAD ped. onboard and available for referral.
In the meantime, Lymemom3, you may email me and we can talk about options. Depending on who was on that list fm TTC Foundation, there can be long waiting lists; at least for 2 of them for sure. PA in particular is over a year long list.
I am very sorry that your children are not well. There are answers however, and there is help for your family.
There are two other potential options that may be of service to you for your children. Some of the direction would depend on your childrens' specific needs and helping to match your family appropriately with the right doctor who can care for you and hopefully, then, bridge their treatment with your local physician.
In the meantime, you may both visit www.lymediseaseassociation.org and click on the left column to LymeAid4Kids fund and consider this application if you have not yet done so. Depending on who you see, this can then be submitted to their office if you are approved for a partial or full one-time grant.
Feel free to PM me if the referral would be of help for you.