CHRONIC INFECTION OR NEW INFECTION?

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agnas
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/11/2009 1:15 PM (GMT -7)   
Hi, I am a new member to the message board.

I have been symptomatic with an unknown illness since March of 2006. My symptoms are very Lyme like in nature. All of my bloodwork always came back very normal with each test performed. In October of 2008 I was told I had a Lyme infection. My doctor believed that it was a new infection (IGG p39 and IGG p 41, positive ELISA and positve WESTERN BLOT). He put me on 3 weeks of amox. and said that I would not need further treatment. This doctor is not lyme literate, however he was very adamant about this being a new infection. Is there a possibility that this has been in my system a while and has been causing my symptoms? Or is this definitely a new infection? any suggestions would be greatly appreciated! thanks..here is a general overview of how my symptoms developed...ps before al of thiis, in 2007 i tested positive ELISA but only 1 band on the IGM (doctor said it was irrelevant and not Lyme related)
 
hair loss, chronic headaches, chronic fatigue, muscle weakness, weak nails, exercise intolerance, numbness/tingling in upper right portion of the back, headaches in back of head by the neck, unexplained rashes, low grade fever, worsened tolerance to alcohol, joint pain/stiffness...and my most recent symptom pancreatitis/malabsorption.

agnas
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/11/2009 1:20 PM (GMT -7)   
SORRY!!!! I messed up the IGG and IGM

in 2007 i tested positive with an 1 IGG band

in 2008- i tested positive with 2 IGM bands, 41 and 39!

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/11/2009 5:21 PM (GMT -7)   
Hi agnas!

Welcome to the board!
As KO-LD said to find a Lyme literate doc would be the best; this could have been in your system since a while and causing you the problems you describe; the tests are not very reliable; i.e. there are people who never developed an IGg or IGm titer and some who never got tested positiv by Elisa / Westernblod but had a positive PCR test result; that is why llmds treat lyme along with clinical symtoms; the symptoms you descirbed are typical for lyme; did you get tested for co- infections?
I hope you get better soon!! dorit

agnas
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/11/2009 6:30 PM (GMT -7)   
Yes I was tested for co-infections...they came back negative...is there a possibility this is a false positive? I read that lyme tests could show false positives, but I also read that the p-39 band was the most specific for lyme disease which would make that almost impossible...any thoughts? thanks again!

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/12/2009 11:39 AM (GMT -7)   
Hi agnas!

My personal thought is that the p 39 band makes it much more likely to be a positive test result for lyme than a false positive one because of your symtoms; band 41 is often the first to show up and bands 30, 31, 34, and 39 are all Lyme specific bands. Have you been tested by Igenex?

You may read KeeepHope`s thread " Chronic Lyme Disease and Co-infections: Clinical Overview" posted yesterday 6.18pm, its said there that false
positives tests are rare (Aguero-Rosenfeld, Wang et al., 2005); its a very informative link.

If you have symptoms/ feel sick, and you ruled out other reasons for your symptoms, best would be to see an llmd.
I think others could give you some help to find a doc, I cant help with this cause I stay in Europe. greetings, dorit

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/22/2009 10:31 AM (GMT -7)   
hey agnas
what lab did you send your blood work too?
IGENEX is the best.
You can get all of their info. on line IGENEX,COM
You sound like a lymie to me for sure. But the fever could be bart. I had a fever every darn day...it is the pits sweating through the clothes all the time.
Instead of looking for a LLMD as they call them. I would look for a Dr. who is trained in Natruropthic medicine and herbal medicine.
AbX do not kill all of the lyme Bacteria. And that is why your symtoms all come back after stopping the abx. And also your immune system has been greatly effected by not only the lyme but all the drugs that you have been taking.
amoxy is good to take if you just got really sick..and really high fever and know that you just got it again.
I know when my kids get it again...it really nails them. My lilly got it again this aug. also found it in her head. actually found two bites on her head...I was so worried. But I got her on high doses of amoxy right away, she is 44 pounds..and she got put on 1,200 for 40 days...till her 106 fever broke.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/22/2009 10:48 AM (GMT -7)   

Hi agnas, welcome to the board!

No test for Lyme is completely reliable, and results can vary by lab. From what I understand, the ELISA only catches about 30% of Lyme cases.  I believe it is significant that yours was positive in 2007.   Which lab did your Western Blot?  If it was a lab such a Quest, they do not list all the Lyme-specific bands.  It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

Besides Lyme, ticks can transmit other infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  Have you been tested for these by a Lyme lab?

Three weeks of treatment is not long enough for Lyme even if your infection was caught within two weeks of the bite.  I do not believe you have been treated properly.  It is very important to see a Lyme knowledgeable doctor and be tested for the co-infections.  If you need a recommendation, you can email me at ko_@bellsouth.net

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.

I hope you can get answers soon.

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