Send Onmyway well wishes!

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teenLymer
Regular Member


Date Joined Dec 2006
Total Posts : 186
   Posted 2/16/2009 12:25 AM (GMT -7)   
She has not posted her own note here, nor has she given me permission to disclose any info on her, but with the situation she's in medically right now, she might appreciate peoples' "good vibes" coming her way.
 
Feel better soon, Diane!!
 
~Sierra

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/16/2009 6:57 AM (GMT -7)   
Diane, please check in with us when you can.  I hope things improve for you soon.

Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 2/17/2009 6:25 PM (GMT -7)   
Hi Everyone,
 
I was in the hospital b/c I had a blood clot in the lower lobe of my lung! Not sure where it came from I imagine it was from the removal of my old picc that i had in for a little over a year and then they tried to force a new line back in the same hole and no luck so we had to put a new one in the right arm!
 
Sunday woke up took my oral meds, drank water and BAM horrible chest pain on the left side! I knew something was not right so off to the ER we went! They did an X-Ray and a CT Scan with Contrast and I ended up with a blood clot! So where it came from I have no idea nor do they! They Admitted me and started Lovenox shots in the belly 2 times a day. They hurt like the dickens! I am also on Coumadin! I begged the Dr. to let me go home yesterday if I did the shots to myself! So they let me out!!! Yeah!!!! I got no sleep it was every 4 hours knock, knock!
 
I am feeling ok, tired and I am having a lot of difficulties peeing. Sorry to be so graphic but this just started yesterday! I am on IV Tygacil and oral Flagyl. SO I am not sure what is up with the unrinary incontinance! If anyone has any thoughts or ideas I am all ears!!!!
 
So that is basically it! I just thank god it did not end up in my heart or my Brain!!!! The Angels were looking out for me!
 
Thank you Sierra for not divulging the info without my permission! I am an open book though and don't care b/c I feel we all learn from each other! I just talked to Georgiagirl earlier and her arm has been aching really bad. I told her to go to the hospital and have an Ultrasound! She went last week and they refused to do an Ultrsound. After she heard my story today she was so upset and went to a different hospital and I told her to demand an Ultrasound! What Dr. denies and Ultrasound to a person with a picc line????? Anyway so now we need to pass the prayers on to her!
 
I will keep you updated on her situation! Ya know you can never been to sure.
 
I appreciate everyone's prayer and concerns! It was scary but everyone made it much easier!!!!!
 
Hugs,
Onmyway
Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!


sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 2/17/2009 9:55 PM (GMT -7)   
oh Diane.

I am so sorry. I thought you were still recouperating from the forum.
You dear woman! You've been through another storm!!!
I am so glad you did not just 'write it off' as a Lyme symptom that 'will pass'.


Please let your doc know that you are having difficulty with urination!
I will be praying for you every day until your sweet energy bunny self emerges.
Please stay in touch and feel free to call or email if you 'need to talk'.

love, ~d

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/18/2009 10:26 AM (GMT -7)   
Thank you Diane.
You have such a big heart....you really do.

*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 2/19/2009 4:56 PM (GMT -7)   
Hi Diane,

I'm so sorry to hear that, but I'm so glad you're doing better now.

Take care and feel better soon!

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/20/2009 11:52 AM (GMT -7)   
Sending good wishes your way!  Take Care, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 2/23/2009 7:32 PM (GMT -7)   

Thank you all, still dealing with the Pulmonary Embolism!

It is not shrinking and the blood is not thinning as quickly as they would like! It only went from a 1 to a 1.3 in 5 days. I see a long road ahead! I am very discouraged and have been feeling like crap! Very fatigued, shortness of breath and nausea. I was back in the ER 2 days after hospital released me and that was when they realised it was not thinning quick enough! They upped my dosage so I have to get tested tomorrow so we will see where I am on my Ptt/INR test! I am really hoping thinnner blood will make me feel better.

They say Hypercoagulation prevents you from healing and the bacteria hides in the fibrin in the vlood vessels! I always feel like my blood vessels are constricted. Sounds weird but true. If anyone has any experience with Blood Clots in the lungs please let me know! I am interested to hear your story.

Thank you again for all the prayers and well wishes!!!

Onmyway


Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/24/2009 9:44 AM (GMT -7)   
I'm so sorry your going through this. I tried to call you last night. Hang in there ok.

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 2/24/2009 6:38 PM (GMT -7)   
Diane, i just wanted to let you know that I am thinking about you and praying. Try to focus on what you need to do for that day. We are all behind you. love, amey

sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 2/24/2009 10:54 PM (GMT -7)   
Dear Diane,
I am right beside Amey praying for you.
We want you to be well and back on your feet, energizer bunny'ing!!
Can u call on Dr.B and inquire as to what their clniical experience and safe integrative approach might be for an embolism?
With love, Sojourner

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/25/2009 6:38 AM (GMT -7)   

Diane, I am very sorry you are going through this and feeling worse because of it.  From what I understand, Lyme can cause clotting problems in some people.  Your Lyme doctor knows what it is going on right?

I hope you feel better soon.  Hang in there okay?


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/25/2009 4:16 PM (GMT -7)   
Diane, how are you feeling today?
When do you go back to the doctor?

Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 3/4/2009 8:14 PM (GMT -7)   

Just and update to everyone, I am still dealing with this PE and Hypercoagulation. I had my levels up to 1.4 and then this past Monday I had my blood drawn again and it dropped to 1.0. Theraputic range for someone like me is between 2 and 3 so I have a ways to go. I was at 1.0 when I was in the hospital!

I am seeing a very good Hematologist tomorrow. I am preying he can help me. Sjourner, I cannot take any herbs while on Coumadin there are so many things that counteract with that medicine I have to be so careful!!! I can't even eat Broccoli! I do appreciate your prayers.

Amey- I miss you girl I posted to you on another post you had going. I hope you are doing well! I have not heard or seen many post about you or your health and your treatment so I am just hoping things are moving forward!

Everyone on this board is so sweet and I swear you begin to become like family after a while! The things we go through I often feel like one is going through it but so is everyone else because of the constant support! I cannot tell you how much I have appreciated it. Especially Georgiagirl she is always calling and checking on me no matter how bad she feels she is always thinking of others! Actually that goes for everyone!

I will update you all tomorrow after I get back forom my appointment! I know he is going to want to put me back on the Lovenox shots but at this point I will do whatever I have to, to get rid of this or improve the situation!

I started to have some pretty sharp chest pains today on the right side so this appointment can not come any sooner!!!!

Have a good night!! Oh and I forgot to thank Ticker and Sierra!!! Thank you!

God Bless,

Diane

 

 


Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!

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