Who is at Envita now?

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studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 2/16/2009 7:55 AM (GMT -7)   
I am in Arizona trying to make a decision. I don't think most here aren't as bad, mentally, as my wife. Just wondering what results you are having as opposed to prognosis.

Thanks,
Claude

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/16/2009 11:15 AM (GMT -7)   
they are not going to let you go back and talk to the others getting treatment. not even if you ask for them by name.
I had alot of people that were trying to track me down and they were very private about my even being there.
that is a hospital procedure. I am happy to talk to you directly about your wife.
For one..I am glad that you made it out there. I am happy that she made it out there.
I was in bad shape when I got there too. I told everyone off when I got there and could not sit up or take off my shades.
I was walking like a sailor and was trying to figure out if the 4 seaons would be a nice place to die. lol..not funny. But it is the ugly truth of the mental bad side of lyme and the colpase of the immune system.
You made it this far. Don't give up. No one is going to make you any promises. Take it one day at a time. and go for it.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/16/2009 11:15 AM (GMT -7)   
I know a bunch that are there. But it is not for me to mention them.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 2/16/2009 6:56 PM (GMT -7)   
Funny thing about that. I had 60 treatments with EDTA chelation therapy for my arteries and we were always in the same room chatting together. Some times it makes you wonder if they are trying to hide something by keeping you separated like maybe some are on different payment schedules or what? It makes people suspicious.

Claude

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 2/16/2009 7:12 PM (GMT -7)   
Claude: I agree with you, I read MV post and thought the same thoughts. If they were proud of the success with their treatment, they would not have a problem with spreading the word around. Just my take on it... D

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 2/16/2009 8:51 PM (GMT -7)   
I called them last year, long before MV went there and they told me they did NOT use antibiotics to treat Lyme but only used botanicals. Now MV has gone home with what she called "handfuls of antibiotics." Figure that out....I get a bad feeling about the whole thing honestly.  D

studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 2/17/2009 6:40 AM (GMT -7)   
I talked to Marie yesterday. I can start with a less expensive protocol and see if it works. Marie is very informative and has been a lot of help. I drove 2000 miles to get here and I have to try.

Claude

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/17/2009 7:18 AM (GMT -7)   
That is good news!!! I keep my fingers crossed for big big big improvement!!! dorit

snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 2/17/2009 9:33 AM (GMT -7)   
There has been a new discovery that I cant say much about.  The reason Biaxin and Plaquenil are working so much better than other combos is starting to make more sense.  Within the next 3-4 months we will know for sure.  Everyone hang in there and be positive.  If possible...I am not a doctor...but I would try the B & P combo.

studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 2/17/2009 7:11 PM (GMT -7)   
I was at Envita today. We drew blood for the tests. They charge twice as much as anyone else. But I have to make sure that the right test goes to Igenex. They are giving me a little heat because I want to start out of protocol. They say the protocol has changed since Marie started in October. I think this has something to do with money. I want to see if her brain will start to clear like it did for Marie. If it doesn't I'll know that Lyme is not the answer. There is a high possibility that my wife has early dementia or Lewibodies and the Lyme was a coincidence. She has always been an introvert and taking care of her mother for 17 years has taken it's toll.

More tomorrow.

Claude

sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 2/19/2009 11:38 PM (GMT -7)   
Dear Claude,

My heart goes out to you in the decisions that you are needing to make for your wife.
I have read up on your latest posts to catch up...

Follow your heart and your gut instinct. You sound like a very smart man. Your posts are well thought out.

This disease can sometimes put us in a place of feeling desperate to find those answers b/c of the long suffering we see our loved ones going through and quite frankly, b/c of bad behavior that has caused a serious breakdown in the medical community b/c of the politics in moving R&D forward as it should have been. It is wrong that our families are placed in this position. So. please keep asking good questions and only do what you believe is right in your heart to do.

I just wanted to share (hoping that it will be an encouragement to you) - that I will be praying for your strength and for the direction you are to go, to care for your precious wife. I am also going to pray for her health to be restored. She is obviously a very giving and compassionate woman having cared for her mother for so many years. It is a difficult journey we face when the symptoms become so very complicated and life altering.

As you go forward with your quest for the right answer. remember that Lyme mimics and induces other system weaknesses based on many variables within the individual's body. The brain is a complex infrastructure. For some it heals remarkably fast; for some it is a slower steady two steps forward, one back remediation. It all depends on those variables involved for each individual and the areas of the brain involved.

You are right, you have driven a very long way. You deserve the answers to your questions and you need them to meet your satisfaction so that you have peace in your heart that you are doing the right thing. I am encouraging this based on the concerns you shared. I am glad you were able to speak w/Marie.

Feel free to email if you need to talk. Blessings, Sojourner

By the way, Claude, the first vehicle I learned stick shift on at age 16 (way back 'then') was a 1957 Gold Studebaker (I think it was a Packard). I could barely reach the pedals and my dad was the driving instructor in the after school program at our H.S. Imagine how that might have gone down. I was so embarrassed to be driving the most 'old fashioned' car on the lot and had no understanding of classic. The car had belonged to my great, great uncle and dad bought for some change, I believe. I did eventually learn; both to drive it and an appreciation for it. yeah

Post Edited (sojourner) : 2/20/2009 12:22:33 AM (GMT-7)


studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 2/20/2009 6:20 AM (GMT -7)   
KeepHope and sojourner,
Thanks loads for you support. My wife had her first treatment yesterday. We are going to try to blear the 'mud' out of her brain first. If there is no improvement after 3 weeks (12 treatments) I believe I will be done trying.

Claude

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/20/2009 11:57 AM (GMT -7)   
Claude!
I am so proud of you for sticking it out! I was happy to talk to you. And it was so funny that your wife said in the background, who are you talking
to that talks so much! ha...so I was happy to talk to her also. Remember to tell the people at the clinic to talk to her about her horses, or her babies
as she put it. She needs to think of taking care of them. Since she is a nurturing type. This is the only thing that worked of me. When I was just done with myself
Enivta is trying like everyone else in the world to figure out how to deal with everyones illness. And I only had two infections and most have 3-4.
Everyone is different. And they are still learning. I had one treatment and it worked well for me. But then the other new treatment came out
and I did it too.
I talked to alot of people in Scottsdale and alot of these people had someone sick in their family too. And these people would walk into the
clinic and expect to talk to me while I was getting my 6 hour treatment. Not cool. They do put people together in big rooms. I sat and talked with snake and about 6 others for a hour. Some people like it quiet. And others have their whole family. And about 50% of the people
there are coming out of chemo that did not work and they are dying. So it is a sort of sad deal to get to know some of these people.
I learned alot about cancer. I made some good friends there. My heart is heavy for them. It is a supportive place. Enivta asked me if
they could give out my e-mail to people who had questions about my treatment. I told them no problem. They have a huge board
posted on a wall with all of the success stories there.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 2/21/2009 6:30 AM (GMT -7)   
The two treatments this week were with a cath in her arm. She tries to get up and leave. So I am right there. She was too quick for me yesterday. She got half way through the treatment and grabbed the tube and pulled it out. She refused to have it inserted again so we were done for the day. The tranquilizer I gave her had no effect. The port goes in Tuesday. I hope that goes well.

Claude

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 2/21/2009 12:14 PM (GMT -7)   
Claude, I am so sorry for what you and your wife are going through. It's great that you spoke to Martha's Vineyard. Hang in there and try to trust that the treatments will work, as they did for Marie. Your wife is extremely lucky to have you. I wish you both all the best. Valerie

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/21/2009 1:46 PM (GMT -7)   
Just hold in there. The surgery is going to be hard on her. It was hard on me. Maybe the percoset will calm her down. Make sure you get those BEFORE you go to the hospital. They will give you the perscription at the clinic. Heah...it will knock her on her butt some. Just don't forget to take the
pain killers like every 4 hours....or she will be in alot of pain..and that will, like me, make her mad as hell...lol
That along with whatever they gave you...should make her very sleepy.
And she should not open her own doors...carry a purse.....just make sure she does not do anything with her rigth arm....for a long time..like 3 weeks.
It will annoy her some. Tell her you understand.
I am only concerned about how they leave the "JUNGLE GYM' on the chest from tuesday to Friday.
This is when they tap it...all has to be very sterile. And then tap that all up, and then they leave a 8 inch tube hanging..which I would have all wrapped up like a hose in the center of my chest.
Yes for all to see..lol
But if she is a puller....I would not trust her with this. Plus I would have to wash my hair on Monday or Tuesday morning real well. Because I could not get one drop of water in my open PORT without serious infection.
Plus....if she meddles with it...like pulls off the end of it...or cuts it somehow...i think she could bleed out.
Ask them....I just don't trust her with it on all the time.
Plus it is in fact rather annoying.
It is going to take her weeks to get over the surgery. And not because it is all of a big deal, but for someone with lyme or a back immune system any surgery or medications is really rough for us.
So give her some more time than just 3 weeks Claude. She is going to be tired. I had dementia badly. I did not know who anyone was. And would look at my kids every day...like...oh...you have grown so much since the last time I saw you....uhhhhh yesterday??????
So hang in there. I am a bit younger than her, 45, and just don't give up.....hang in there.
get her a DVD with her favorite movies. so she will sit still.....and take a pillow..and some warm socks..that place is freezing!
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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